Bone Pain from MM

Posted by tristram @tristram, 6 days ago

What does anyone do hat's helpful to alleviate bone pain. I'm newly diagnosed with MM, nd bone pain has shown up this week. Tylenol doesn't seem to help. Nor CBD cream. Nor heat. Other suggestions?

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Hi. I don't have MM, but I do have bone pain, especially in my legs (joints from osteoarthritis, but bone pain is more recent). The only relief I get is a long soak in hot bath with Epsom salts (if not hot, at least as warm as you tolerate). I do this twice a day for 20 min and it does help. It doesn't fix it but def helps. Hope it helps you too.

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I have found if I keep hydrated (lots of water) during the day, I do not have bone pain. Seems to help.

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Anyone experiencing side effects from Neulasta injections following chemo?
How do you cope with bone and joint pain?

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@jam5

Anyone experiencing side effects from Neulasta injections following chemo?
How do you cope with bone and joint pain?

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Hi Judy, to eliminate the bone pain from Neulasta Injections, oncology teams usually recommend Clairitin, the over the counter antihistamine. (Not Clairitin D). One capsule or tablet per day beginning the day of the injection and take at least 7 days. It works! Ask your husband’s doctor if it’s ok for him to take it. It works!!

You’ll see it discussed in the coversations below.
https://connect.mayoclinic.org/discussion/bone-pain-from-nulasta/

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Hi there sorry about bone pain Posted by tristram @tristram, Bone pain is frustrating and hard to deal with it ( I support you). My sister had bone pain for years (screamed every time she moved and temporary paresis, (cancer) Sometimes she couldn't dress here self or fell on floor (wait for her husband to come home from work). Once she when to store and store called family to come get her. I'm not as bad, But been at Walmart and legs wouldn't move, it's painful (Lucky I had family to helped me out and got a cart. WOW! Things I use to do vs what I use to do. I was trying to rack neighbors lawn, did it millions times but few weeks ago- I got stuck and needed help home. I was in so much pain (I have to rest and relax in order for my pain to go away) Sister's husband died of Multiple Myeloma last year! Thoughts and prayers

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@loribmt

Hi Judy, to eliminate the bone pain from Neulasta Injections, oncology teams usually recommend Clairitin, the over the counter antihistamine. (Not Clairitin D). One capsule or tablet per day beginning the day of the injection and take at least 7 days. It works! Ask your husband’s doctor if it’s ok for him to take it. It works!!

You’ll see it discussed in the coversations below.
https://connect.mayoclinic.org/discussion/bone-pain-from-nulasta/

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Lori,
I checked with oncology office and have the Claritin capsules to use
Thank you again and again and again
Judy

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@loribmt

Hi Judy, to eliminate the bone pain from Neulasta Injections, oncology teams usually recommend Clairitin, the over the counter antihistamine. (Not Clairitin D). One capsule or tablet per day beginning the day of the injection and take at least 7 days. It works! Ask your husband’s doctor if it’s ok for him to take it. It works!!

You’ll see it discussed in the coversations below.
https://connect.mayoclinic.org/discussion/bone-pain-from-nulasta/

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Have Claritin capsules on hand to use
How long do the joint and bone pain symptoms start after receiving Neulasta, and how long does it tend to last?
Thanks,
Judy

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@jam5

Have Claritin capsules on hand to use
How long do the joint and bone pain symptoms start after receiving Neulasta, and how long does it tend to last?
Thanks,
Judy

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It’s really difficult to predict the onset of the bone pain. I had Neulasta several times. The first time the pain started around day 7. I had actually stopped taking the Claritin thinking I was past the point where it would hurt. Nope!! LOL.
Subsequent shots were good because I kept taking the Claritin. Except for my last session. I had to double up on the capsule taking 2 in one day because it was intense. So, it’s good to just start taking it within a day of the injection and stay on for 8 days. If he backs off and the pain returns, just pop another capsule.

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Thanks, Lori we did use Claritin as well after the injections but didn’t take it for 7 days probably should have because he got some pretty intense pain in his shoulder and drs started him on prednisone for it. Have had 4 injections so far and will see tomorrow how well it did. Also do people get a low grade temp with the injections? Because with the pain in his r shoulder also came a temp which resolved within 12 hours. It was a little scary since his picc is on the right side. Drs did a trough check in him.

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@jrwilli1

Thanks, Lori we did use Claritin as well after the injections but didn’t take it for 7 days probably should have because he got some pretty intense pain in his shoulder and drs started him on prednisone for it. Have had 4 injections so far and will see tomorrow how well it did. Also do people get a low grade temp with the injections? Because with the pain in his r shoulder also came a temp which resolved within 12 hours. It was a little scary since his picc is on the right side. Drs did a trough check in him.

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It’s really so hard to predict how long to take the Claritin. I had that happen too, when I felt 7 days was enough and then booom! Nope!! Too soon…back on Claritin a few more days.

Anytime we’re on chemo and get a low grade temp it’s really important to check in with the oncologist. The timing on the low grade fever after the Neulasta injection could be a small reaction to that shot, or, because we’re also at the lowest point of immunity, it can also be the sign of infection. So I’m glad his doctors checked to make sure that wasn’t the case.

How’s your husband doing with his chemo? I know he was reticent to try again. Appears he’s tolerating it better? Is he still on for the transplant the end of February???

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