Blood Cancers & Disorders Support Group

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Comment

I itch on my left arm all the time it drives me crazy NO creams etc...

https://connect.mayoclinic.org/comment/820106/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

Comment

MY LV started in Jan 2019 and I know many of you have been dealing with...

https://connect.mayoclinic.org/comment/52586/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Comment

Well, hopefully a lower dosage when you hit your target platelet level will stop the itch!...

https://connect.mayoclinic.org/comment/1307142/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18 4:52pm

Comment

I am 76 and have been on Hydrea since May 2023. I found that I was...

https://connect.mayoclinic.org/comment/1259882/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16 8:22pm

Comment

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Comment

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Comment

I have been living with this condition now for over 10 years. It is progressively worse...

https://connect.mayoclinic.org/comment/1011986/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Comment

Thank you. We have been to three dermatologist, oncologist, allergist, now heading to hematologist. No medications...

https://connect.mayoclinic.org/comment/993409/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Comment

I’m going on two years now on hydroxyurea (500mg) with pretty much no side effects except...

https://connect.mayoclinic.org/comment/940886/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Comment

Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...

https://connect.mayoclinic.org/comment/931576/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023