Blood Cancers & Disorders Support Group

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Comment

I have a diagnosis of MDS/MPN- RARS-T. My platelets have been too high. When I began...

https://connect.mayoclinic.org/comment/1183829/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

Comment

As far as I know, ET with a positive JAK2 mutation normally suggests you have a...

https://connect.mayoclinic.org/comment/284525/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

Comment

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29 5:32pm

Comment

My wife(75 years) was diagnosed CNS lymphoma 2.5 years ago and treated with M-RVP plus Cytarabine...

https://connect.mayoclinic.org/comment/895063/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Comment

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:15am

Comment

HALFWAY TREATMENT? I saw the hematologist a few days ago. He diagnosed me with "MDS with...

https://connect.mayoclinic.org/comment/1325787/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 12 2:58pm

Comment

I’m interested in this discussion. I had been diagnosed with ITP years ago, no treatment, well...

https://connect.mayoclinic.org/comment/750627/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Comment

Hi @mkt24 There are several discussions about cancer of the blood in this Blood Cancer and...

https://connect.mayoclinic.org/comment/1071669/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020