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Discussions (56)
Comments (759)
Comment
She is healing well. Still has balance and vision issues but she is functional. I have...
https://connect.mayoclinic.org/comment/1195416/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Dec 22, 2024
Comment
I agree with this prognosis....my MDS is in remission of AML with no blasts. After 8...
https://connect.mayoclinic.org/comment/1171862/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Nov 11, 2024
Comment
@lindamarf, I hope you saw the helpful reply from @marco88 (Lee) about transfusion and risk of...
https://connect.mayoclinic.org/comment/1231549/
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Discussion:
Anyone have or heard of MDS with 5q-syndrome?
Support Group:
Blood Cancers & Disorders
Posted: Feb 7 11:52am
Comment
I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...
https://connect.mayoclinic.org/comment/951872/
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Discussion:
How long can we be on azacitidine (Vidaza)?
Support Group:
Blood Cancers & Disorders
Posted: Oct 22, 2023
Comment
@ikampel2 managing a chronic illness is challenging enough, but to be without support from friends and...
https://connect.mayoclinic.org/comment/94438/
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Discussion:
I have Myelodysplastic Syndrome (MDS) spawned from ITP
Support Group:
Blood Cancers & Disorders
Posted: Apr 25, 2016
Comment
My MDS-CMML-1 will be five years in July 2025. I see my oncologist every 90 days...
https://connect.mayoclinic.org/comment/1242288/
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Discussion:
MDS-CMML-1: Anyone dealing with pruritus (itching)?
Support Group:
Blood Cancers & Disorders
Posted: Feb 21 12:22pm
Comment
Hi All, My Mother (77yr old) has had MDS for a few years now, I found...
https://connect.mayoclinic.org/comment/1170127/
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Discussion:
Looking for experiences with the progression of MDS
Support Group:
Blood Cancers & Disorders
Posted: Nov 8, 2024
Comment
Hi! I am impressed you have been on "Watch and Wait" for so many years. Revlamid...
https://connect.mayoclinic.org/comment/1080342/
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Discussion:
Anyone have or heard of MDS with 5q-syndrome?
Support Group:
Blood Cancers & Disorders
Posted: Jun 3, 2024
Comment
Hello @bradmm, I am not a medical professional, but the listed symptoms of MDS include: -...
https://connect.mayoclinic.org/comment/253113/
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Discussion:
MDS and cognitive decline
Support Group:
Blood Cancers & Disorders
Posted: Mar 5, 2019
Comment
My husband has MDS, been tired for a long time. He just stated his Arenesp shots...
https://connect.mayoclinic.org/comment/1193392/
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Discussion:
Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?
Support Group:
Blood Cancers & Disorders
Posted: Dec 19, 2024
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