Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with Pancytopenia on January 29th. Got to see a hematologist on March 19th,...

https://connect.mayoclinic.org/comment/1097692/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Comment

Oops, sorry about that. I saw the Enasidenib and jumped to the conclusion of AML. MDS...

https://connect.mayoclinic.org/comment/876785/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Thank You for sharing Jean-Pierre! If you don’t mind me asking how long have you had...

https://connect.mayoclinic.org/comment/961009/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Comment

Hi Brenda, IPSS-R are the initials for International Prognostic Scoring System - Revised. I know this...

https://connect.mayoclinic.org/comment/962588/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Comment

I have been diagnosed with MDS with platelets running in the low 30 even down to...

https://connect.mayoclinic.org/comment/867472/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2023

Comment

Lori, Thank you for your input. As many have said on the site, you are amazing....

https://connect.mayoclinic.org/comment/1301976/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11 4:01pm

Comment

Hi Lori and thank you for your reply. I was diagnosed from ITP to MDS maybe...

https://connect.mayoclinic.org/comment/1312711/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 25 3:39pm

Comment

Excellent advice - I needed to hear this today! I have officially told my nurse self...

https://connect.mayoclinic.org/comment/1368331/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 11 11:47am

Comment

Since you mentioned ET and the VA in one sentence may I ask if you were...

https://connect.mayoclinic.org/comment/194347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Comment

I was diagnosed about 3 months ago with MDS 5Q as well. Tried shots, didn't work,...

https://connect.mayoclinic.org/comment/1259703/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 4:10pm