Blood Cancers & Disorders Support Group

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Comment

Actually my Dr just ordered the EPO bloodwork for me. I have MDS/MPN-RS-T with jak2 mutation....

https://connect.mayoclinic.org/comment/595082/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2021

Comment

Hi @pathilt. Welcome to Mayo Connect! Myelodyplastic Syndromes or MDS are a group of bone marrow...

https://connect.mayoclinic.org/comment/1111910/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

She is healing well. Still has balance and vision issues but she is functional. I have...

https://connect.mayoclinic.org/comment/1195416/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Comment

I agree with this prognosis....my MDS is in remission of AML with no blasts. After 8...

https://connect.mayoclinic.org/comment/1171862/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Comment

Diagnosed with "MDS" Aug of 2024...I have been getting the Retacrit injection weekly to generate more...

https://connect.mayoclinic.org/comment/1176999/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Comment

Hi All, My Mother (77yr old) has had MDS for a few years now, I found...

https://connect.mayoclinic.org/comment/1170127/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

Comment

Hi! I am impressed you have been on "Watch and Wait" for so many years. Revlamid...

https://connect.mayoclinic.org/comment/1080342/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Comment

Hello @bradmm, I am not a medical professional, but the listed symptoms of MDS include: -...

https://connect.mayoclinic.org/comment/253113/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

Comment

My MDS-CMML-1 will be five years in July 2025. I see my oncologist every 90 days...

https://connect.mayoclinic.org/comment/1242288/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 12:22pm

Comment

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...

https://connect.mayoclinic.org/comment/951872/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023