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Public Support Group 246 total results
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I corrected the broken link. See this video of Dr. Ayalew Tefferi discussing potential drugs for...
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@samlupowitz, if you would like to seek a second opinion from Mayo experts in myelofibrosis and...
Discussion
Does Jardiance have serious interactions with Jakafi?
I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...
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After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
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Medicines for reducing fibrosis in polycythemia vera patients
I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...
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Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
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