Blood Cancers & Disorders Support Group

I was recently diagnosed at 76 years old. I have no symptoms at this time, however google tells me my prognosis is 3 to 5...

I read about using CAR-T cell techniques to treat myelofibrosis. The link to the information I saw is on the Blood Cancer UK website (The...

My husband has myelofibrosis. Was taking Vidaza it worked for a while. His Doctor started him on Vonjo, does anyone have experience with Vonjo.

Patient with primary myelofibrosis with high ferritin levels and was recommended to start chelation therapy. Articles on deferasirox are just as scary as the problems...

Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage

Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...

Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...

Feb 9, first phlebolotomy (iron is low) Polycythemia Vera and Myelofibrosis - any helpful tips. I have problem with dehydration, (as teenager, I was hospitalized...

I have a very enlarged spleen from myelofibrosis. Diagnosed in early 2011, I have taken no medication, only specific supplements. Until recently, my Consultant said...

My mum has had essential thrombocythamia which has now progressed to myelofibrosis. Following a period where she's been very ill she has had the most...