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419 total results
Discussion
Any information om using CAR-T cell techniques to treat myelofibrosis
I read about using CAR-T cell techniques to treat myelofibrosis. The link to the information I saw is on the Blood Cancer UK website (The...
Last active: Jun 7 8:23am
Discussion
Massive spleen and dangerous low platelet count
Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage
Last active: Sep 8, 2023
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Last active: May 18 11:24am
Discussion
Interferon-alpha impact on JAK2 allele ratio?
Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...
Last active: Dec 18, 2024
Discussion
Chemo tablet or splenomegaly to reduce spleen enlargement?
I have a very enlarged spleen from myelofibrosis. Diagnosed in early 2011, I have taken no medication, only specific supplements. Until recently, my Consultant said...
Last active: Apr 4, 2021
Discussion
Getting rid of oral thrush: What works?
My mum has had essential thrombocythamia which has now progressed to myelofibrosis. Following a period where she's been very ill she has had the most...
Last active: Sep 3, 2024
Discussion
Your tips as I prepare for first phlebotomy
Feb 9, first phlebolotomy (iron is low) Polycythemia Vera and Myelofibrosis - any helpful tips. I have problem with dehydration, (as teenager, I was hospitalized...
Last active: Feb 18, 2023
Discussion
Does Jardiance have serious interactions with Jakafi?
I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...
Last active: Jun 1, 2023
Discussion
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Last active: 5 days ago
Discussion
What's the expected trend and variance in blasts percentage?
I have Myelofibrosis. I am interested in any experience others have had with the trend in blasts percentage and in particular the variation in this...
Last active: Jul 20 12:18pm