458 total results
Discussion
Long awaited Drug for myelofibrosis (MF) has been released
Australian-made cancer drug gets billion-dollar US FDA approval https://www.smh.com.au/national/australian-made-cancer-drug-gets-billion-dollar-us-fda-approval-20230918-p5e5gp.html
Discussion
Any information om using CAR-T cell techniques to treat myelofibrosis
I read about using CAR-T cell techniques to treat myelofibrosis. The link to the information I saw is on the Blood Cancer UK website (The...
Discussion
When to start worrying about blast percentage changes
I have myelofibrosis and my blast counts have normally been in the one to 2% . Today my blast count was 17%. Is that normal...
Discussion
My husband has started taking Vonjo, has anyone taken Vonjo?
My husband has myelofibrosis. Was taking Vidaza it worked for a while. His Doctor started him on Vonjo, does anyone have experience with Vonjo.
Discussion
Chelation therapy
Patient with primary myelofibrosis with high ferritin levels and was recommended to start chelation therapy. Articles on deferasirox are just as scary as the problems...
Discussion
Massive spleen and dangerous low platelet count
Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Discussion
Interferon-alpha impact on JAK2 allele ratio?
Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...
Comment
My husband has myelofibrosis anyone else have this disease?
https://connect.mayoclinic.org/comment/73345/
Comment
I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential...
Comment
Does anyone with Myelofibrosis have high triglycerides and/or low HDL, despite being on a statin?
Discussion
Chemo tablet or splenomegaly to reduce spleen enlargement?
https://connect.mayoclinic.org/discussion/chemo-tablet-or-splenomegaly-to-reduce-spleen-enlargement/
I have a very enlarged spleen from myelofibrosis. Diagnosed in early 2011, I have taken no medication, only specific supplements. Until recently, my Consultant said...
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