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Long awaited Drug for myelofibrosis (MF) has been released
Australian-made cancer drug gets billion-dollar US FDA approval https://www.smh.com.au/national/australian-made-cancer-drug-gets-billion-dollar-us-fda-approval-20230918-p5e5gp.html
Last active: May 2 10:02pm
Discussion
Any information om using CAR-T cell techniques to treat myelofibrosis
I read about using CAR-T cell techniques to treat myelofibrosis. The link to the information I saw is on the Blood Cancer UK website (The...
Last active: Jun 7 8:23am
Discussion
When to start worrying about blast percentage changes
I have myelofibrosis and my blast counts have normally been in the one to 2% . Today my blast count was 17%. Is that normal...
Last active: Oct 30 8:32pm
Discussion
My husband has started taking Vonjo, has anyone taken Vonjo?
My husband has myelofibrosis. Was taking Vidaza it worked for a while. His Doctor started him on Vonjo, does anyone have experience with Vonjo.
Last active: Oct 11 8:52pm
Discussion
Chelation therapy
Patient with primary myelofibrosis with high ferritin levels and was recommended to start chelation therapy. Articles on deferasirox are just as scary as the problems...
Last active: Sep 23 5:09pm
Discussion
Massive spleen and dangerous low platelet count
Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage
Last active: Sep 8, 2023
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Last active: May 18 11:24am
Discussion
Interferon-alpha impact on JAK2 allele ratio?
Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...
Last active: Dec 18, 2024
Discussion
Chemo tablet or splenomegaly to reduce spleen enlargement?
I have a very enlarged spleen from myelofibrosis. Diagnosed in early 2011, I have taken no medication, only specific supplements. Until recently, my Consultant said...
Last active: Apr 4, 2021