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MDS with sideroblasts and trying Lospatercept or Elritercept?
Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?
Last active: Aug 1, 2025
Discussion
What Caused MDS in My Case?
My doctor shies away from answering my questions about the probable cause of MDS in my case. I guess this is pretty normal for most...
Last active: May 25, 2025
Discussion
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
Last active: Nov 19, 2025
Discussion
Anyone had cataract surgery living with MDS?
I was told yesterday by my eye doctor it is time for cataract surgery. I have an evaluation scheduled for November 1st. I have sent...
Last active: Dec 9, 2025
Discussion
Anyone dealing MDS and how are you doing?
Hello Anyone dealing with MDS and how long and how are you doing?
Last active: Dec 28, 2024
Discussion
Newly diagnosed MDS-IB2 and vidaza
Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...
Last active: Jun 28, 2025
Discussion
MDS diagnosis with DDX41 Germline and Somatic
For the last 6 months I've been going to a Hematologist to determine the cause of my low WBC, low platelet count and low B12...
Last active: May 24 12:37pm
Discussion
Has anyone developed an enlarged spleen with MDS?
My husband has been diagnosed with MDS and has been getting treatment for many years. He has developed an enlarged spleen. Has anyone else had...
Last active: May 12 12:36pm
Discussion
MDS with weight loss, dizziness & weakness
I have been diagnosed with MDS. It started with weight loss about 4 years ago and no other symptoms. Eventually, I gained some of the...
Last active: Feb 20 4:45pm
Discussion
MDS in a 75 year old male
First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...
Last active: Nov 28, 2024