Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
760 total results
Discussion
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: May 15 6:29pm
Discussion
MDS: How to improve my condition in watch & wait?
I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...
Last active: Aug 3, 2023
Discussion
Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?
After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...
Last active: Apr 16 6:00pm
Discussion
Anyone have or heard of MDS with 5q-syndrome?
Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...
Last active: Mar 22 9:54am
Discussion
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Discussion
has anyone had Long Covid, before a diagnosis of MDS?
Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...
Last active: Apr 19 8:32am
Discussion
I have been diagnosed and under treatment for MDS
I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?
Last active: Dec 18, 2023
Discussion
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Last active: Sep 1, 2024
Discussion
MDS treatment options other than bone marrow transplant
I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?
Last active: Jan 14 9:06pm