Blood Cancers & Disorders Support Group

Hi everyone, I have a brother newly diagnosed with MDS. He has had low platelets in the 70,000 range for 7+ years and has been...

Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...

First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...

My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

Hello Anyone dealing with MDS and how long and how are you doing?

Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.

Hi , Thankyou for allowing me to join. My husband aged 75 was diagnosed with high risk MDS in April 2025 , and started inquovy...