Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
1,068 total results
Discussion
B12 deficiency mimicking MDS
4-months ago I went for a full blood workup, 1st one in 7-years. To my surprise my WBC was 1.6, Platelets 75, Hemoglobin level of...
Last active: Nov 28, 2025
Discussion
Anyone had cataract surgery living with MDS?
I was told yesterday by my eye doctor it is time for cataract surgery. I have an evaluation scheduled for November 1st. I have sent...
Last active: Dec 9, 2025
Discussion
Anyone dealing MDS and how are you doing?
Hello Anyone dealing with MDS and how long and how are you doing?
Last active: Dec 28, 2024
Discussion
Newly diagnosed MDS-IB2 and vidaza
Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...
Last active: Jun 28, 2025
Discussion
MDS with weight loss, dizziness & weakness
I have been diagnosed with MDS. It started with weight loss about 4 years ago and no other symptoms. Eventually, I gained some of the...
Last active: Feb 20 4:45pm
Discussion
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: 6 days ago
Discussion
MDS in a 75 year old male
First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...
Last active: Nov 28, 2024
Discussion
Low Platelets with Myelodysplastic Syndrome (MDS)
Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...
Last active: Jan 24, 2023
Discussion
Anyone living with MDS Extended diagnosis experience?
Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...
Last active: Jan 19, 2025
Discussion
What are your experiences with lenalidomide (Revlimid) for MDS?
My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...
Last active: May 10, 2025