Blood Cancers & Disorders Support Group

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...

My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...

Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...

Has anyone with MDS experienced swollen and sometimes painful hands. Seems to be random and not connected to any specific activity. If you have what...

I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...

Anyone dealing with these?

After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...