Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
727 total results
Discussion
Anyone taking retacrit and releuko injections for MDS
My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?
Last active: Feb 1, 2024
Discussion
Anyone living with MDS Extended diagnosis experience?
Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...
Last active: Jan 19 9:57am
Discussion
MDS: How to improve my condition in watch & wait?
I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...
Last active: Aug 3, 2023
Discussion
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: Feb 28 10:17pm
Discussion
Anyone have or heard of MDS with 5q-syndrome?
Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...
Last active: Mar 22 9:54am
Discussion
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Discussion
I have been diagnosed and under treatment for MDS
I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?
Last active: Dec 18, 2023
Discussion
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Last active: Sep 1, 2024
Discussion
MDS treatment options other than bone marrow transplant
I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?
Last active: Jan 14 9:06pm