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Discussion
MDS: Does it affect your sleep?
If you have MDS do you think it has anything to do with not sleeping all night? I wake up 3-4 am every night. I...
Last active: Jul 11 10:51am
Discussion
Life Expectancy of MDS-1 Patients
I am an eighty-five year old man on dialysis with MDS-1. Overall, I feel fine, but recently I am starting to feel lifeless, no energy,...
Last active: Oct 12, 2025
Discussion
MDS with sideroblasts and trying Lospatercept or Elritercept?
Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?
Last active: Aug 1, 2025
Discussion
Newly diagnosed MDS-IB2 and vidaza
Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...
Last active: Jun 28, 2025
Discussion
Genetics of CLL in Mother and MF-MDS in Child
My mother was diagnosed with CLL in her early 30’s. I was diagnosed with an ASD with AF. ASD repair with RHF and RBBB. I...
Last active: Oct 5 5:01pm
Discussion
MDS diagnosis with DDX41 Germline and Somatic
For the last 6 months I've been going to a Hematologist to determine the cause of my low WBC, low platelet count and low B12...
Last active: Oct 22 9:02am
Discussion
MDS with weight loss, dizziness & weakness
I have been diagnosed with MDS. It started with weight loss about 4 years ago and no other symptoms. Eventually, I gained some of the...
Last active: Feb 20 4:45pm
Discussion
MDS in a 75 year old male
First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...
Last active: Nov 28, 2024
Discussion
Low Platelets with Myelodysplastic Syndrome (MDS)
Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...
Last active: Jan 24, 2023
Discussion
Anyone had cataract surgery living with MDS?
I was told yesterday by my eye doctor it is time for cataract surgery. I have an evaluation scheduled for November 1st. I have sent...
Last active: Dec 9, 2025