Blood Cancers & Disorders Support Group

I have shortness of breath, neuropathy, enlarged tongue, carpal tunnel syndrome, bruising under eyes. Negative fat pad biopsy

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

Diagnosed with AL amyloidosis through blood tests- 77 years old - is a kidney biopsy necessary? I chose not to do it but am re-thinking....

I have many symptoms of amyloidosis. I had a PyP scan an of heart. Result was equivical- meaning not not neg, but not pos either....

I am an 83 year old female and will be starting treatment of dexamethasone and Daratumumba along with Benadryl and Tylenol I am wondering about...

Just diagnosed with wild type ATTR at 67. I have been prescribed Attruby . My only symptom is tingling in my fingers so I’m hoping...

Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...

HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...

I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...

My doctor is waiting on confirmation from the Mayo Clinic for AL Amyloidosis.