Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

552 total results

Comment

Stimme Sorry but I can't help you with the myelofibrosis because I have splenic marginal zone...

https://connect.mayoclinic.org/comment/591662/

Discussion: Chemo tablet or splenomegaly to reduce spleen enlargement?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2021

Comment

Hi @circawdm, The best my O/H could do with my current Kaiser Advantage plan is to...

https://connect.mayoclinic.org/comment/1316677/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

Comment

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

Comment

Fatigue is a common symptom with all forms of Leukemia and MDS or MPN disorders. Hydrea...

https://connect.mayoclinic.org/comment/850175/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

Comment

Thank you for the message and information. 🙏 it means so much to my husband and...

https://connect.mayoclinic.org/comment/1255061/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

Comment

I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...

https://connect.mayoclinic.org/comment/1164101/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

Comment

@appraiser1946 Hello! I have been on Hydroxyurea since 1992. I am 68 years old and we...

https://connect.mayoclinic.org/comment/1499715/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 6 4:25pm

Comment

Good morning, @davi0937. While you’re waiting for replies from other Myelofibrosis members regarding their bone health,...

https://connect.mayoclinic.org/comment/1536435/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 27 9:16am

Comment

Glad to hear that the Besremi is working for folks! Anyone getting depression as a side...

https://connect.mayoclinic.org/comment/1379597/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2025

Comment

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840952/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023