Blood Cancers & Disorders Support Group

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Comment

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Posted by wiggins32 @wiggins32, Nov 28, 2022 My heat goes out to you. I have Polycythmia/...

https://connect.mayoclinic.org/comment/799630/

Discussion: Need Help - Hematology won't do testing

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Comment

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Comment

Hi, I am not sure if I have ET or myelofibrosis as my oncologist/hematologist seems to...

https://connect.mayoclinic.org/comment/1252507/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 11:12am

Comment

Hi cdurbin, I am sorry your BMB was painful. I must have had an experienced nurse...

https://connect.mayoclinic.org/comment/1277147/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 12:15pm

Comment

Dear Tokyolin: I am “flynnconn” and you can check out my specifics in 2 previous posts...

https://connect.mayoclinic.org/comment/882771/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Comment

I was diagnosed with ET when I was 50. My platelet level was successfully controlled with...

https://connect.mayoclinic.org/comment/1327870/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15 3:39pm

Comment

Also, I might add that a few years ago they thought it may have morphed into...

https://connect.mayoclinic.org/comment/1051289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Comment

Welcome to Connect @kwmotley Reading through your comments it looks like you’re taking a daily aspirin...

https://connect.mayoclinic.org/comment/974721/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

Comment

Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...

https://connect.mayoclinic.org/comment/1294207/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 10:39am