Blood Cancers & Disorders Support Group

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Comment

Wondering why Xarelto? I'm in 70s diagnosed in 2019, on HU plus baby aspirin. My platelets...

https://connect.mayoclinic.org/comment/796538/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

Comment

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

I’ve seen many who get there numbers down in the 500’s and are ok with that....

https://connect.mayoclinic.org/comment/764541/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

I was wondering the same thing- that it took Jackie to do her own research. For...

https://connect.mayoclinic.org/comment/1195078/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Comment

I'm so sorry your mom is dealing with MF. Guessing she has the CALR or MPL...

https://connect.mayoclinic.org/comment/1069688/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

Comment

Just following up. My Jak2 was negative and my EPO was 5. I don't know what...

https://connect.mayoclinic.org/comment/852226/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Comment

Is a bone marrow test necessary? I was diagnosed with ET through blood tests. I'm JAK2...

https://connect.mayoclinic.org/comment/827322/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Comment

I have MDS/MPN with Thrombocytosis. Also JAK2 and SRSF2 positive. I take Hydroxyurea to reduce my...

https://connect.mayoclinic.org/comment/256907/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2019

Comment

I am sorry you are going through so many issues. Since you are positive for JAK2...

https://connect.mayoclinic.org/comment/836053/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Comment

Yes, my naturopath has me on Nattokinese, it’s similar but different. He works w/my heme doc....

https://connect.mayoclinic.org/comment/1017850/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024