Blood Cancers & Disorders Support Group

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Comment

She decided to put me on an iron supplement and do a JAK2 test to figure...

https://connect.mayoclinic.org/comment/298975/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

Comment

Did you have a bone marrow test? I chose not to. My oncologist/ hematologist said PV...

https://connect.mayoclinic.org/comment/1163289/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27 6:57am

Comment

I have ET with the JAK2 mutation and my hematologist-oncologist has me on both HU and...

https://connect.mayoclinic.org/comment/1085943/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13 7:00am

Comment

I was asymptomatic with high platelets for 10 years with no treatment. Just monitored platelet counts....

https://connect.mayoclinic.org/comment/846848/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Comment

Normal platelets are 150 to 450 per LabCorp. Also, your other counts are normal. I would...

https://connect.mayoclinic.org/comment/942814/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Comment

I was 65 years old and was diagnosed with ET/Jak2 mutation. My platelet count was 1...

https://connect.mayoclinic.org/comment/786781/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Comment

I was on keto better than 1 yr. Lost intended weight pcp extremely happy with labs...

https://connect.mayoclinic.org/comment/645538/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Comment

Hi Karen, I am unfamiliar with TET2 mutation. I have ET JAK2. I live in the...

https://connect.mayoclinic.org/comment/783703/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Comment

Is TET2 a new driver mutation? All I have heard of is JAK2, CALR, and MPL....

https://connect.mayoclinic.org/comment/765429/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...

https://connect.mayoclinic.org/comment/798768/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023