Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,473 total results

Comment

The JAK2 mutation is common among multiple blood cancers. You need to get a molecular panel...

https://connect.mayoclinic.org/comment/298976/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

Comment

Hi Sarah, you haven’t posted an update and I was wondering if you’ve had any news...

https://connect.mayoclinic.org/comment/873122/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Comment

I also have ET JAK2. I am taking Hydroxyurea. I do not take aspirin because I...

https://connect.mayoclinic.org/comment/1017787/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

Comment

Hi John, My name is Debbie. I was just diagnosed with CEL IN December 2023. I...

https://connect.mayoclinic.org/comment/997143/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

Comment

I'm 76 and was diagnosed last year with ET JAK2. So far I'm only on 1...

https://connect.mayoclinic.org/comment/1513671/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:55pm

Comment

I just hope this isn't preventing you from getting the correct treatment/relief. I would imagine it...

https://connect.mayoclinic.org/comment/231793/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2019

Comment

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Comment

Have not heard alot about Jakafi. I have had PV/JAK2 for 7 years, on Hydroxyurea for...

https://connect.mayoclinic.org/comment/1447775/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025