Blood Cancers & Disorders Support Group

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Comment

@janemc I was never advised one way or tge other about taking nsaids while on hydroxyurea...

https://connect.mayoclinic.org/comment/1561512/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 7:23am

Comment

It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...

https://connect.mayoclinic.org/comment/1048208/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Comment

Hi Remo, I also have ET w/Jak2. There are a lot of different opinions on this...

https://connect.mayoclinic.org/comment/919583/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Hi, We recently found out that my 16 yo daughter has JAK2, very rare and her...

https://connect.mayoclinic.org/comment/799486/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2023

Comment

The JAK2 mutation is common among multiple blood cancers. You need to get a molecular panel...

https://connect.mayoclinic.org/comment/298976/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

Comment

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

Hi, I was checked for JAK2 by a rheumatologist looking to see if I had rheumatoid...

https://connect.mayoclinic.org/comment/1228592/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

Comment

@hopeful33250 Hello, I was diagnosed with APS, Jak2 and Myelofibrosis about 7 weeks ago after having...

https://connect.mayoclinic.org/comment/1565911/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 3 9:22pm

Comment

From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...

https://connect.mayoclinic.org/comment/870089/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

After two weeks on one pill of HU my eGFR went from 82 to 52. Has...

https://connect.mayoclinic.org/comment/826035/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

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