Blood Cancers & Disorders Support Group

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Comment

Hi, Eileen, since I, too, was diagnosed this summer with ET JAK2, I would be interested...

https://connect.mayoclinic.org/comment/772655/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

Comment

Everyone, I learned years ago that platelet level was not the most important factor in deciding...

https://connect.mayoclinic.org/comment/846204/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Comment

Hi Ingrid077, I hope you get definite answers soon. I was diagnosed in June 2022 with...

https://connect.mayoclinic.org/comment/792008/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2023

Comment

From my understanding, both the bone marrow biopsy and a peripheral blood test can be used...

https://connect.mayoclinic.org/comment/1058852/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

Comment

I have Essential thrombocytosis with JAK2 mutation. I take a drug called hydrea and it has...

https://connect.mayoclinic.org/comment/916876/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Comment

Hi Helen- Thanks for your post. I was diagnosed with Essential Thrombocytemia and mutant JAK2 genes...

https://connect.mayoclinic.org/comment/328576/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2020

Comment

I have taken Bcomplex since 1970 Recently my dr told me to lower the dose to...

https://connect.mayoclinic.org/comment/1031730/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Comment

I have JAK2+ ET and I've never had side effects from Hydrea in the 30 years...

https://connect.mayoclinic.org/comment/194375/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

Comment

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Comment

Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...

https://connect.mayoclinic.org/comment/1009781/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024