Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

307 total results

Comment

I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...

https://connect.mayoclinic.org/comment/1279867/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:23am

Comment

Colleen, thanks for the link. I did a lot of reading and realized one sad fact....

https://connect.mayoclinic.org/comment/738604/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

Comment

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024

Comment

Do not worry Jenrico. Your symptoms are common for AL but will improve the more you...

https://connect.mayoclinic.org/comment/88307/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2016

Comment

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14 4:05pm

Comment

Lori, Yes I appreciate what you are saying. Sometimes it is best to leave well enough...

https://connect.mayoclinic.org/comment/775155/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Comment

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

Comment

My husband has MGUS and amyloidosis and received treatments and then a stem cell transplant in...

https://connect.mayoclinic.org/comment/847175/

Discussion: Has anyone experienced or is familiar with a high PTHrp?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Comment

Lori, Thank you for the article, and for your inquiry also I am still uncertain as...

https://connect.mayoclinic.org/comment/775063/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022