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Discussion
Why would Dr. order brain and brain stem MRI for Waldenstrom's?
Why would Dr order brain and brain stem mri after three years worth Waldenstroms. Numbers up and down.
Last active: Oct 27 10:15am
Discussion
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
Last active: Apr 30 11:00am
Discussion
Should Waldentrom's Patients Get Flu Shots?
I had a bone marrow biopsy back in February and was diagnosed with Waldenstrom's. I'm still learning about my cancer and wonder if I should...
Last active: Sep 5, 2023
Discussion
Waldenstroms symptoms worse
Diagnosed over a year ago. Hot/ cold sweats worse than before after last rutuxin infusion. Stopped taking Imbruvica on my own and prednisone. Need fan...
Last active: Apr 5 4:50pm
Discussion
Brukinsa for Waldenstrom and Skyrizi for Crohn's/colitis
Anyone out there taking Brukinsa for Waldenstrom and Skyrizi for Crohn's/ulcerative colitis. If so, what has been your experience?
Last active: May 17 4:22pm
Discussion
With Waldenstroms for a couple of years. Numbers including hemoglobin
Dr just added prednisone to my meds even though I take dexamethosone . Is this normal protocol? I get Ruxience, and octigam infusions as well.?Been...
Last active: Sep 22 12:36pm
Discussion
Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?
My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a...
Last active: 1 hour ago
Discussion
Waldenstrom Macroglobulinemia with MYD88-wild type
Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...
Last active: May 30, 2023
Discussion
Waldenstrom macroglobulinemia (WM): Deciding treatment options
I was diagnosed this week with WM. No symptoms except persistent anemia and periodic breathlessness. I had a bone marrow biopsy which confirmed IgM, free...
Last active: May 25, 2024