Blood Cancers & Disorders Support Group

Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?

Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...

Diagnosed over a year ago. Hot/ cold sweats worse than before after last rutuxin infusion. Stopped taking Imbruvica on my own and prednisone. Need fan...

Second round of omigam seems to be helping I. Addition to my prescience and bruins and dexamethosone. But iga at all time low. Dr says...

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...

Newly diagnosed with Walderstroms and scheduling 1st Infusion Treatment. How should my spouse and I prepare for this new experience. Looking for the wisdom of...

My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a...

Why would Dr order brain and brain stem mri after three years worth Waldenstroms. Numbers up and down.

Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...

Anyone out there taking Brukinsa for Waldenstrom and Skyrizi for Crohn's/ulcerative colitis. If so, what has been your experience?