268 total results
Discussion
Why would Dr. order brain and brain stem MRI for Waldenstrom's?
Why would Dr order brain and brain stem mri after three years worth Waldenstroms. Numbers up and down.
Discussion
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
Discussion
Should Waldentrom's Patients Get Flu Shots?
I had a bone marrow biopsy back in February and was diagnosed with Waldenstrom's. I'm still learning about my cancer and wonder if I should...
Discussion
Waldenstroms symptoms worse
Diagnosed over a year ago. Hot/ cold sweats worse than before after last rutuxin infusion. Stopped taking Imbruvica on my own and prednisone. Need fan...
Discussion
Waldenstroms patient diagnosed with brain menigioma: What to expect?
Any idea what to expect? Oncologist sending me to neurologist🥲
Discussion
Brukinsa for Waldenstrom and Skyrizi for Crohn's/colitis
Anyone out there taking Brukinsa for Waldenstrom and Skyrizi for Crohn's/ulcerative colitis. If so, what has been your experience?
Discussion
With Waldenstroms for a couple of years. Numbers including hemoglobin
Dr just added prednisone to my meds even though I take dexamethosone . Is this normal protocol? I get Ruxience, and octigam infusions as well.?Been...
Discussion
Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?
My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a...
Discussion
Waldenstrom Macroglobulinemia with MYD88-wild type
Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...
Discussion
Waldenstrom macroglobulinemia (WM): Deciding treatment options
I was diagnosed this week with WM. No symptoms except persistent anemia and periodic breathlessness. I had a bone marrow biopsy which confirmed IgM, free...
Comment
I also have MGus. I have had this for at least 15 years, but was just...
https://connect.mayoclinic.org/comment/1427189/
Comment
Navigating all of these issues is trying. I’m staying optimistic for family but every once in...
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