Blood Cancers & Disorders Support Group

Two years ago I suffered a stress fracture of the tibia plateau while riding my bike through sand, since then I have 4 other stress...

I have recently been prescribed teriparatide as an adjunct to Prolia for the treatment of osteoporosis. I have had ET for 5 years and am...

Anyone out there that has all three of these conditions - how are your conditions managed and measured? Currently on Jakafi - iron/ferritin level rising...

My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...

I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....

INCA033989 is a new drug that targets the CALR mutation in patients with MPNs (especially ET and MF). Something to keep an eye on, especially...

After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

I am 71, active, and in relatively good health. I have ET and VW's, my platelet numbers are around 520 with treatment (Jakifi). Im scheduled...