Polycythemia Vera, Antiphospholipid Syndrome & Hemochromatosis

Posted by chattiek @chattiek, Jan 7 4:52pm

Anyone out there that has all three of these conditions – how are your conditions managed and measured?
Currently on Jakafi – iron/ferritin level rising in addition to white blood cells rising. Looking for direction on who to see – fear something is progressing. Oncologist/Hematology is watching – but seemed surprised when hemochromatosis showed up – not sure why from all I have been reading? When blood taken – dip to anemia

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