Blood Cancers & Disorders Support Group

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Comment

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

Comment

It sound like your doctors are on top of your health. That is a high Jak2...

https://connect.mayoclinic.org/comment/1156319/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Comment

Maybe asked already, were you tested for the JAK2 mutation (or others)? This would typically be...

https://connect.mayoclinic.org/comment/1102017/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s...

https://connect.mayoclinic.org/comment/1100223/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

I was diagnosed around 2 1/2 years ago and agree that blood results along with JAK2...

https://connect.mayoclinic.org/comment/937883/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2023

Comment

Blood test and 2 biopsies. Yes – JAK2 platelet count 893 – 75mg Aspirin and 500mg...

https://connect.mayoclinic.org/comment/887557/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Comment

Hi @milestogo Then it’s best not to mess with success… Do you recall, when you were...

https://connect.mayoclinic.org/comment/1524640/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 11 11:42am

Comment

There is a research study which implicated Jak2 mutation to endometrial cancer, If you're interest in...

https://connect.mayoclinic.org/comment/1500875/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 8 11:38am

Comment

I am currently taking 500 mg Hydroxyurea on Monday/Wednesday/Friday. Headaches are less. I have ET JAK2....

https://connect.mayoclinic.org/comment/940964/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

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