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1,176 total results
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Discussions (74)
Comments (1,102)
Comment
Hello @apr931, Welcome to Connect. You may notice that I moved your message to combine it...
https://connect.mayoclinic.org/comment/194267/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Dec 26, 2018
Comment
Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to...
https://connect.mayoclinic.org/comment/974124/
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Discussion:
Essential Thrombocytosis: What amount of hydroxy do you take?
Support Group:
Blood Cancers & Disorders
Posted: Dec 2, 2023
Comment
Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...
https://connect.mayoclinic.org/comment/1062089/
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Discussion:
Others out there with CEL (Chronic Eosinophilic Leukemia)?
Support Group:
Blood Cancers & Disorders
Posted: May 4, 2024
Comment
I don't think anyone is telling people not to travel, just to take their meds and,...
https://connect.mayoclinic.org/comment/1089550/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 19, 2024
Comment
For everyone’s info, I messaged through the patient portal and was told up to 10 days...
https://connect.mayoclinic.org/comment/231795/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Feb 19, 2019
Comment
It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...
https://connect.mayoclinic.org/comment/1048208/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Apr 10, 2024
Comment
Hi Remo, I also have ET w/Jak2. There are a lot of different opinions on this...
https://connect.mayoclinic.org/comment/919583/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 27, 2023
Comment
Hi, We recently found out that my 16 yo daughter has JAK2, very rare and her...
https://connect.mayoclinic.org/comment/799486/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Jan 20, 2023
Comment
The JAK2 mutation is common among multiple blood cancers. You need to get a molecular panel...
https://connect.mayoclinic.org/comment/298976/
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Discussion:
High WBC and platelet count
Support Group:
Blood Cancers & Disorders
Posted: Mar 17, 2020
Comment
my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...
https://connect.mayoclinic.org/comment/1279375/
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Discussion:
Does your oncologist acknowledge that ET may cause bone pain?
Support Group:
Blood Cancers & Disorders
Posted: Apr 11 12:11pm
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