Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,473 total results

Comment

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

Comment

It sound like your doctors are on top of your health. That is a high Jak2...

https://connect.mayoclinic.org/comment/1156319/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Comment

Maybe asked already, were you tested for the JAK2 mutation (or others)? This would typically be...

https://connect.mayoclinic.org/comment/1102017/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s...

https://connect.mayoclinic.org/comment/1100223/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

I have no pain or anything else with Hydrea, 500 mg daily. My platelets were 800,000...

https://connect.mayoclinic.org/comment/854230/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

Comment

@dragonflylynda I do not take HU for my ET JAK2...I only take a baby aspirin. No...

https://connect.mayoclinic.org/comment/1466046/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

Comment

My platelet level is the same as yours with JAK2. I take a baby aspirin. So...

https://connect.mayoclinic.org/comment/1441800/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Comment

So sorry for your problems. I wish you all the best. Sorry I didn't see, do...

https://connect.mayoclinic.org/comment/1421263/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 22, 2025

Comment

I’ve just progressed from CML to AML and will be starting same treatment next week. I’d...

https://connect.mayoclinic.org/comment/994063/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Comment

I found MPN Voice on healthunlocked.com. I was diagnosed with ET JAK2 in June 2022 so...

https://connect.mayoclinic.org/comment/770040/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022