Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,446 total results

Comment

@dragonflylynda I do not take HU for my ET JAK2...I only take a baby aspirin. No...

https://connect.mayoclinic.org/comment/1466046/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

Comment

My platelet level is the same as yours with JAK2. I take a baby aspirin. So...

https://connect.mayoclinic.org/comment/1441800/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Comment

So sorry for your problems. I wish you all the best. Sorry I didn't see, do...

https://connect.mayoclinic.org/comment/1421263/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 22, 2025

Comment

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Comment

I’ve just progressed from CML to AML and will be starting same treatment next week. I’d...

https://connect.mayoclinic.org/comment/994063/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Comment

I found MPN Voice on healthunlocked.com. I was diagnosed with ET JAK2 in June 2022 so...

https://connect.mayoclinic.org/comment/770040/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

Comment

I've had ET with Jak2 since 2020 and on HU with baby aspirin, I've recently found...

https://connect.mayoclinic.org/comment/1414548/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Comment

Realized I did not answer your initial question. I am not a dr, but my understanding...

https://connect.mayoclinic.org/comment/720876/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2022

Comment

@1995victoria, those are all good questions to ask at your next appointment with oncology. I would...

https://connect.mayoclinic.org/comment/1417629/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 17, 2025