Blood Cancers & Disorders Support Group

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Comment

@scottmatteo I, too, have myelofibrosis. diagnosed by Mayo almost 6 years ago. But at that time,...

https://connect.mayoclinic.org/comment/657916/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Comment

I don't recall if you mentioned using NAC or glutathione. Individually they offer important benefits. Together,...

https://connect.mayoclinic.org/comment/132659/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Comment

Hi, I agree that the whole person approach is better. I finally have a decent primary...

https://connect.mayoclinic.org/comment/1275734/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6 2:05pm

Comment

I am beginning to think my mom had this and no one told us. She lived...

https://connect.mayoclinic.org/comment/926244/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2023

Comment

Hi @circawdm, The best my O/H could do with my current Kaiser Advantage plan is to...

https://connect.mayoclinic.org/comment/1316677/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30 2:39pm

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Comment

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

Comment

@ettap , Great comment. Most importantly, because it pertains to me, as well!(!) Anyway, I have...

https://connect.mayoclinic.org/comment/652790/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2021

Comment

I'm extremely grateful that they have a better diagnostic system now, and even more grateful that...

https://connect.mayoclinic.org/comment/892932/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

Comment

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022