Blood Cancers & Disorders Support Group

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Comment

Hi Isabelle, My name is Rayna. I was diagnosed with ET/pre fibrotic myelofibrosis (the two docs...

https://connect.mayoclinic.org/comment/870277/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

Please note in krispin the magnesium high absorption forms. Krispin's site also has a section on...

https://connect.mayoclinic.org/comment/317312/

Discussion: Caregiver of acute myeloid leukemia patient

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2020

Comment

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25 3:28pm

Comment

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840955/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...

https://connect.mayoclinic.org/comment/132623/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: May 7, 2020

Comment

You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...

https://connect.mayoclinic.org/comment/980340/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Comment

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

Comment

My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...

https://connect.mayoclinic.org/comment/1091333/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 21 5:57pm

Comment

My wife just tested positive for JAK2 on Dec 15th, after blood work on Dec 8th...

https://connect.mayoclinic.org/comment/994115/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:47pm

Comment

I was diagnosed with ET and put on 500 mg a day to lower platelets from...

https://connect.mayoclinic.org/comment/1081405/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5 2:56pm