Blood Cancers & Disorders Support Group

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Comment

Thanks Coleen for your input. My husband's disease is not considered leukemia but a disease of...

https://connect.mayoclinic.org/comment/101842/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 28, 2016

Comment

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...

https://connect.mayoclinic.org/comment/1097321/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Comment

I am also inerested in what medication you are currently taking. I was on Anagrelide for...

https://connect.mayoclinic.org/comment/1203927/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 4:39pm

Comment

Thank you , your post was a Godsend. After a down day yesterday with my husband’s...

https://connect.mayoclinic.org/comment/1252374/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 7 8:56am

Comment

Bonnie, You will be amazed at how it will all come together with planning. Having such...

https://connect.mayoclinic.org/comment/1324245/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 10 10:56am

Comment

Yes unfortunately that is true. For years after my mom passed from Myelofibrosis I donate to...

https://connect.mayoclinic.org/comment/982569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Comment

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Comment

Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...

https://connect.mayoclinic.org/comment/870437/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

Hi @davi0937, I am not of any help as I really do not know what “type”...

https://connect.mayoclinic.org/comment/1348648/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15 9:33am