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302 total results
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Discussions (30)
Comments (272)
Comment
At this point seems to be NMZL; however when I asked about WM SMM the oncologist...
https://connect.mayoclinic.org/comment/752396/
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Discussion:
Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Support Group:
Blood Cancers & Disorders
Posted: Sep 22, 2022
Comment
know the AL amyloidosis is in his kidneys and the neuropathy but is systemic so where...
https://connect.mayoclinic.org/comment/113912/
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Discussion:
Waldenstroms and amyloidosis
Support Group:
Blood Cancers & Disorders
Posted: Sep 23, 2016
Comment
I would like to view the video but receive a message that it is not available....
https://connect.mayoclinic.org/comment/1337037/
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Discussion:
Diagnosed with AL Amyloidosis. What can I expect?
Support Group:
Blood Cancers & Disorders
Posted: Jun 28 11:19am
Comment
For a patient with MZL also with wtttr and AL cardiac amyloidosis in persistent Afib and...
https://connect.mayoclinic.org/comment/845254/
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Discussion:
Waldenström's Macroglobulinemia
Support Group:
Blood Cancers & Disorders
Posted: Apr 18, 2023
Comment
My husband will probably start with chemo depending on the results of the immunoglobulins panels. His...
https://connect.mayoclinic.org/comment/902284/
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Discussion:
My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jul 26, 2023
Comment
Hah. Whatever works, eh? 😂 You made me laugh out loud this morning. I intended to...
https://connect.mayoclinic.org/comment/726708/
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Discussion:
Recently diagnosed with AL Amyloidosis: Any advice?
Support Group:
Blood Cancers & Disorders
Posted: Jul 14, 2022
Comment
You could have a bone marrow biopsy. I would ask for your Dr to do a...
https://connect.mayoclinic.org/comment/1119116/
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Discussion:
Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Support Group:
Blood Cancers & Disorders
Posted: Aug 6, 2024
Comment
I had positive results from a kidney biopsy sent to Mayo Clinic with an Amyloidosis diagnosis...
https://connect.mayoclinic.org/comment/965936/
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Discussion:
Positive test results for amyloids
Support Group:
Blood Cancers & Disorders
Posted: Nov 16, 2023
Comment
So sorry to hear this about both being coupled as in your case! Amyloidosis sometimes seems...
https://connect.mayoclinic.org/comment/869639/
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Discussion:
Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: May 31, 2023
Comment
yes, what you learned is correct. The AvWS was diagnosed first, and when the usual suspects...
https://connect.mayoclinic.org/comment/1185087/
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Discussion:
Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2024
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