Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

339 total results

Comment

I was diagnosed with AL Amyloidosis nearly 2 years ago. It was randomly found during a...

https://connect.mayoclinic.org/comment/1114762/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Comment

The ONLY symptom I had that brought me to a doctor was that I had the...

https://connect.mayoclinic.org/comment/88314/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Comment

@cousinvinney My Kappa FLC bloodwork level of 5 was ten years ago. IF you have MGUS,...

https://connect.mayoclinic.org/comment/1490467/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Comment

I was diagnosed with IgG MGUS in 2021 and currently have blood tests for CBC PLT...

https://connect.mayoclinic.org/comment/770884/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Comment

Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...

https://connect.mayoclinic.org/comment/845626/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...

https://connect.mayoclinic.org/comment/74558/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

Comment

I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....

https://connect.mayoclinic.org/comment/88301/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2016

Comment

Cataracts are, if you have any other signs with them, markers of developing Amyloidosis of some...

https://connect.mayoclinic.org/comment/723440/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

Comment

Hi @catalpa, Blood and urine tests can help detect signs of amyloidosis. But from my understanding,...

https://connect.mayoclinic.org/comment/1377181/

Discussion: Testing for Amyloids with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

Comment

I took camzyos for HCM, and lost taste. I was later diagnosed with AL Amyloidosis systemic....

https://connect.mayoclinic.org/comment/1468463/

Discussion: Does anyone have change in taste while on hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2025