Blood Cancers & Disorders Support Group

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Comment

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Comment

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

Comment

@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...

https://connect.mayoclinic.org/comment/661954/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2021

Comment

@kanaazpereira Thank you for asking me to join in. I was diagnosed with a very rare...

https://connect.mayoclinic.org/comment/88316/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Comment

I think I found the Connection for you!! It’s an older conversation and I’m not sure...

https://connect.mayoclinic.org/comment/874415/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Comment

I was diagnosed with MGUS December 2024- this started in December 2023. My lab results were...

https://connect.mayoclinic.org/comment/1238465/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Feb 16 3:23pm

Comment

I was treated for amyloidosis in 2007 at Mayo Clinic Rochester. I was there with a...

https://connect.mayoclinic.org/comment/689030/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2022

Comment

I had no symptoms. Amyloid was an incidental finding in a polyp removed during a colonoscopy....

https://connect.mayoclinic.org/comment/824980/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

Hi Nancy, Yes, you are replying right and using the forum as it is intended. I'm...

https://connect.mayoclinic.org/comment/971450/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2023

Comment

I was just dx a week ago through BMB and fat aspirate, but they have elected...

https://connect.mayoclinic.org/comment/104692/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2017