Blood Cancers & Disorders Support Group

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Comment

Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia....

https://connect.mayoclinic.org/comment/70600/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017

Comment

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Comment

I was diagnosed with AL Amyloidosis nearly 2 years ago. It was randomly found during a...

https://connect.mayoclinic.org/comment/1114762/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Comment

The ONLY symptom I had that brought me to a doctor was that I had the...

https://connect.mayoclinic.org/comment/88314/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Comment

Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...

https://connect.mayoclinic.org/comment/624405/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

Comment

I was diagnosed with IgG MGUS in 2021 and currently have blood tests for CBC PLT...

https://connect.mayoclinic.org/comment/770884/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Comment

I have edema in my legs and burning in my ankles. My peripheral neuropathy is getting...

https://connect.mayoclinic.org/comment/1478301/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 2:12pm

Comment

Cataracts are, if you have any other signs with them, markers of developing Amyloidosis of some...

https://connect.mayoclinic.org/comment/723440/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

Comment

Hi @catalpa, Blood and urine tests can help detect signs of amyloidosis. But from my understanding,...

https://connect.mayoclinic.org/comment/1377181/

Discussion: Testing for Amyloids with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

Comment

Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...

https://connect.mayoclinic.org/comment/845626/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023