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Comment

At this point seems to be NMZL; however when I asked about WM SMM the oncologist...

https://connect.mayoclinic.org/comment/752396/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2022

Comment

know the AL amyloidosis is in his kidneys and the neuropathy but is systemic so where...

https://connect.mayoclinic.org/comment/113912/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2016

Comment

I was just dx a week ago through BMB and fat aspirate, but they have elected...

https://connect.mayoclinic.org/comment/104692/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2017

Comment

For a patient with MZL also with wtttr and AL cardiac amyloidosis in persistent Afib and...

https://connect.mayoclinic.org/comment/845254/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Comment

@dazlin WOW, what a good question. This is one of the great mysteries of Amyloidosis diagnosis...

https://connect.mayoclinic.org/comment/172297/

Discussion: Treatment for amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2018

Comment

My husband will probably start with chemo depending on the results of the immunoglobulins panels. His...

https://connect.mayoclinic.org/comment/902284/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2023

Comment

I had positive results from a kidney biopsy sent to Mayo Clinic with an Amyloidosis diagnosis...

https://connect.mayoclinic.org/comment/965936/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Comment

You could have a bone marrow biopsy. I would ask for your Dr to do a...

https://connect.mayoclinic.org/comment/1119116/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 7:28pm

Comment

So sorry to hear this about both being coupled as in your case! Amyloidosis sometimes seems...

https://connect.mayoclinic.org/comment/869639/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hah. Whatever works, eh? 😂 You made me laugh out loud this morning. I intended to...

https://connect.mayoclinic.org/comment/726708/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022