Blood Cancers & Disorders Support Group

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Comment

@devineone -you may want to cross-post this to the kidney and bladder group, also. I'm sorry...

https://connect.mayoclinic.org/comment/213097/

Discussion: AL amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2018

Comment

@kanaazpereira Thank you for asking me to join in. I was diagnosed with a very rare...

https://connect.mayoclinic.org/comment/88316/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Comment

@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...

https://connect.mayoclinic.org/comment/661954/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2021

Comment

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

Comment

@beckyoutlaw1115 Hi, Becky. Yes, it's a tough road to get a diagnosis in the Amy wilderness....

https://connect.mayoclinic.org/comment/172287/

Discussion: Treatment for amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2017

Comment

Ms like2dance2 I can relate with your frustrations in getting someone to take your case. Our...

https://connect.mayoclinic.org/comment/1172561/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Comment

I was treated for amyloidosis in 2007 at Mayo Clinic Rochester. I was there with a...

https://connect.mayoclinic.org/comment/689030/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2022

Comment

I think I found the Connection for you!! It’s an older conversation and I’m not sure...

https://connect.mayoclinic.org/comment/874415/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Comment

I had no symptoms. Amyloid was an incidental finding in a polyp removed during a colonoscopy....

https://connect.mayoclinic.org/comment/824980/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

Hi Nancy, Yes, you are replying right and using the forum as it is intended. I'm...

https://connect.mayoclinic.org/comment/971450/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2023