Blood Cancers & Disorders Support Group

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Comment

Just to update: my doctor lowered Velcade dosage and That has made heartburn and stomach pain...

https://connect.mayoclinic.org/comment/217298/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2018

Comment

Have not had a definitive answer to what type Amyloidosis I have . Had bone marrow...

https://connect.mayoclinic.org/comment/104722/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Comment

I was diagnosed with mgus April 2023, just diagnosed with lymphocytic colitis with colonoscopy biopsy. Starting...

https://connect.mayoclinic.org/comment/1035480/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Comment

I would love to connect with someone who has MM and amyloidosis like I do just...

https://connect.mayoclinic.org/comment/874406/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Comment

I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...

https://connect.mayoclinic.org/comment/1158835/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024

Comment

Hello Anonymous, Multiple Myeloma is a cancer of the plasma cells of the bone marrow, while...

https://connect.mayoclinic.org/comment/50124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2012

Comment

Ibrutinib seems to be keeping my lab levels in check and will continue with it instead...

https://connect.mayoclinic.org/comment/663091/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Comment

I am having amyloidosis on skin..Doctor told not to scrub but i don't even touch it...

https://connect.mayoclinic.org/comment/244391/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2019

Comment

I was dx with Amyloidosis of the ATTR-CM wild type in 2022. The standard of care...

https://connect.mayoclinic.org/comment/1462426/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

Comment

Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...

https://connect.mayoclinic.org/comment/726680/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022