Blood Cancers & Disorders Support Group

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Comment

Hello @susanflower and welcome to Mayo Clinic Connect. I am sorry to hear your itching and...

https://connect.mayoclinic.org/comment/764257/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Comment

So, we don’t even 100% know yet. Because it’s early stage. No itching. Just a faint...

https://connect.mayoclinic.org/comment/1111588/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

@donnamae90 Ultimately the choice for transfusions will be your choice. I am trying to avoid transfusions...

https://connect.mayoclinic.org/comment/1190250/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Comment

I have taken hydroxyurea (started at 500, went to 1000) for a year. I am 78....

https://connect.mayoclinic.org/comment/851807/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Comment

@becky1024 I am a member of the same club, IgM light chain MGUS, that morphed into...

https://connect.mayoclinic.org/comment/731465/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Comment

I was really surprised to find out that my primary doctor, dermatologist , ENT, eye doctor...

https://connect.mayoclinic.org/comment/1086360/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Comment

I’m 72, on 500mh/day for 1.5 years. I’ve had some intermittent inside elbow itching for which...

https://connect.mayoclinic.org/comment/1173254/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

Comment

I have PCV with Jak 2 . I take 2 baby aspirin a day and phlebotomy...

https://connect.mayoclinic.org/comment/919662/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Fatigue is a major complaint. I nap almost every day. Taking 1000mg of hydroxyurea and baby...

https://connect.mayoclinic.org/comment/869738/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Thank you for your response. I had to take Hydrea for 18 months before I was...

https://connect.mayoclinic.org/comment/821980/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023