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Blood Cancers & Disorders Support Group

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2,002 total results
Discussion
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: Jun 10 11:27am
Discussion
Lymphedema and Waldenstroms Macroglobulinemia
Has anyone else been diagnosed with MGUS (I had M spike) and then Waldenstroms Macroglobulinemia with MYD88 gene mutation (after undergoing bone marrow biopsy -...
Last active: Nov 8, 2024
Discussion
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12, 2024
Discussion
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
Discussion
Does anyone know how an FLC ratio of less than .1 effects the risk of
I was diagnosed with MGUS IgG lambda in June 2023 while having bloodwork for a DVT. I then had an ischemic attack in July 2023....
Last active: Jun 19 9:12am
Discussion
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
Last active: Apr 4 9:51am
Discussion
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Last active: Apr 23 9:52am
Discussion
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Jun 6 7:43am
Discussion
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Apr 13, 2024
Discussion
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Apr 25 10:18pm