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Blood Cancers & Disorders Support Group

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No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Last active: Jul 19 10:48am
Discussion
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: Aug 9 12:12pm
Discussion
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17, 2024
Discussion
Need help understanding the readings
Hi a few months of knowing I have MGUS and blood levels seem stable however, my recent phone appointment was a lovely lady but not...
Last active: Aug 22 4:36pm
Discussion
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12, 2024
Discussion
Multiple lymph nodes throughout body
I have a history of MGUS which was diagnosed after a T6 vertebral compression fracture. Dexa shows mild osteopenia. Now I noticed multiple lymph nodes...
Last active: May 21 12:18pm
Discussion
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
Discussion
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Aug 14 4:05pm
Discussion
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
Last active: Apr 4 9:51am
Discussion
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Last active: Apr 23 9:52am