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Blood Cancers & Disorders Support Group

Public Support Group
282 total results
Discussion
AL amyloidosis
My husband is an ESRD patient for 3 years on hemodialysis recently he was diagnosed with AL Amyloidis he is getting the chemo treatment recommed...
Last active: Nov 12, 2018
Discussion
Macular amyloidosis
Hi everyone, Can you please tell me how to manage macular amyloidosis.. The pigmentation is increasing slowly and i am super stressed out.. Please help
Last active: Jun 19, 2023
Discussion
Waldenstroms and amyloidosis
Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?
Last active: Apr 28 8:35pm
Discussion
Diagnosed with MGUS/Amyloidosis
My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda, M proteins came up very high. He had a...
Last active: Jul 20, 2023
Discussion
Treatment for amyloidosis and multiple myeloma
I am currently on Velcade ad Daramumtab infusion to lower my light chains after Dara did not work alone. My first lab was yesterday and...
Last active: Feb 8, 2018
Discussion
AL Amyloidosis maybe?
Hello. I need help/advice...36 M For the last 6 months I am having these health issues. To be more specific, I think it all started...
Last active: Apr 14, 2023
Discussion
Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...
Last active: Mar 7, 2022
Discussion
Does anyone have amyloidosis?
Does anyone know a person that has Amyloidosis? I believe it's directly related to Multi Myeloma? Please advise. v/r Patrick
Last active: Nov 18, 2019
Discussion
Husband diagnosed with smothering myeloma and AI amyloidosis
My husband was diagnosed with smothering myeloma and Al amoloyd in his heart. He served 20 years in the military and now this
Last active: Jul 13, 2022
Discussion
Recently diagnosed with AL Amyloidosis: Any advice?
My mom was recently diagnosed w AL Amyloidosis, our local hospital missed some important tests . We just had our first trip to Mayo. I...
Last active: May 18 8:14am