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Public Support Group 490 total results
Discussions (40)
Mobility during multiple myeloma treatment
I'm the sole caregiver for my wife who was diagnosed with MM late in 2019. The journey to her eventual diagnosis started on August 11,...
Do you exercise daily while in multiple myeloma treatment?
What are your experiences in going to the gym while doing quad therapy for multiple myeloma?
Myeloma newly diagnosed
Myeloma they can treat but not cure- would be interested to hear your thoughts/stories on your Myeloma treatment- I know everyone handles treatment differently. Scary...
Update on MMyeloma treatments 4/17
Started Cycle 3 of treatments today... feel good. 👍🏻 Para Protein is at 1- Blood/Platelets good too. Side effects are minimal- restless sleep a few...
Asked chatGPT about how long to be on treatment for Multiple Myeloma
My spouse has been on Darzalex Faspro + Kyprolis + dex for her Multiple Myeloma after she was taken off Vecade and had a bad...
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Facial flushing and shaky hands after treatment for multiple myeloma
My husband just finished treatment 6 for MM. i sometimes notice facial flushing or shaky hands. Can anyone offer me any insight. Facial flushing before...
Recently diagosed with Multiple Myeloma: What treatments did you have?
Am I in the right discussion group?Diagnosed 6 weeks ago.Tx..... Steve
Myeloma: how long after treatment were you able to go back to work?
Diagnosed Jan '25 with Myeloma- had Pet Scan last week it's just contained in bones thankfully. Took short term disability leave from work that will...
Post CAR-T failure, is there hope?
I have had multiple myeloma now for over eight years. I have been through all the usual treatments. I have had treatment failure after Stem...
Multiple Myeloma: Not a candidate for chemo, what's next?
My 66 year old sister was diagnosed with Multiple Myaloma in January 2020. She is now in hospice. Doctors say her blood levels do not...
Has anyone had an Autologous Stem Cell Transplant after D-VRd therapy?
I just started treatment last Tuesday for Darzalex. That afternoon they got results from my PET showing some bone destruction in my femur and decided...
Amyloidisis of the mouth and myeloma
Does anyone have Amyloidisis in their mouth?? What treatments have helped get rid of the purple sores.. Also have myeloma which is better after trans...
Medication and Chemo: Do you color your hair?
Treatment for MMyeloma- anyone being treated for MM and colors their hair? Has medication or chemo changed anything with your hair/or getting it processed?
Bispecific antibodies For Multiple Myeloma
Good Day, Has anyone investigated or have been offered Bispecific antibodies to treat multiple myeloma or for any type of cancer? If so, have you...
High risk smoldering myeloma protocol after 24 cycles of Revlimid?
I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...
B-Cell Reduction with Smoldering Myeloma
Medicare will not approve IVIG infusions unless a patient has undergone some type of B-Cell reduction or show the appropriate antibody(ies) response to vaccinations. All...
Multiple Myeloma: Come introduce yourself and let's talk
I was diagnosed after a bone marrow biopsy as having indolent myeloma 4 years ago. My oncologist says I now have multiple myeloma. I have...
Multiple myeloma with T (11.14) translokation
My wife is 76 years old and was diagnosed with multiple myeloma on 04/25/2024. She is being treated with Isatuximab + Bortezomib + Dexamethasone. She...
Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...
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