High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Posted by coynelane @coynelane, May 30 3:55pm

I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm currently in cycle 13 & have had stem cell collection. I'd like to learn of others with similar experience and their treatment options at conclusion of 24 cycles.

Interested in more discussions like this? Go to the Blood Cancers & Disorders group.

Is anyone in a clinical trial for smoldering multiple myeloma?

REPLY

Welcome @coynelane. Allow me to bring fellow members @wyom1998 @cctoo @flightdeckjohnn @sylvia67 @lfevold @packgb19 @gingerw who have experience with smoldering myeloma into this discussion.

Here are a few related discussions that may also interest you.
– Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait https://connect.mayoclinic.org/discussion/newly-diagnosed-with-smoldering-multiple-myeloma/
– I have smoldering Myeloma. Does anyone have this diagnosis? https://connect.mayoclinic.org/discussion/multiple-myeloma-i-have-smoldering-myeloma-does-anyone-have-this-diagnosis/
– Is anyone here talking Revlimid? If so please share with me https://connect.mayoclinic.org/discussion/is-anyone-here-talking-revlimid-for-chemo-if-so-please-share-with-me/

Coynelane, how many cycles of lenalidomide (Revlimid) have you had? Is the goal to have a stell cell transplant? How are you feeling?

REPLY
@colleenyoung

Welcome @coynelane. Allow me to bring fellow members @wyom1998 @cctoo @flightdeckjohnn @sylvia67 @lfevold @packgb19 @gingerw who have experience with smoldering myeloma into this discussion.

Here are a few related discussions that may also interest you.
– Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait https://connect.mayoclinic.org/discussion/newly-diagnosed-with-smoldering-multiple-myeloma/
– I have smoldering Myeloma. Does anyone have this diagnosis? https://connect.mayoclinic.org/discussion/multiple-myeloma-i-have-smoldering-myeloma-does-anyone-have-this-diagnosis/
– Is anyone here talking Revlimid? If so please share with me https://connect.mayoclinic.org/discussion/is-anyone-here-talking-revlimid-for-chemo-if-so-please-share-with-me/

Coynelane, how many cycles of lenalidomide (Revlimid) have you had? Is the goal to have a stell cell transplant? How are you feeling?

Jump to this post

I am currently in cycle 13 of Revlimid, feel fine, and am asymptomatic. My doctors have not indicated an immediate need for stem cell transplant. At my next appointment I will ask what is the plan after 24 cycles of Revlimid. That is the reason that I made the post in order to learn what other patients have experienced.

REPLY

@coynelane I echo the welcome to Mayo Clinic Connect.

I just finished round 10 of Revlimid, at a very low dose. Due to other health issues, we are taking a very slow approach to this, in order to not have my kidneys fail. Curiosity has me asking if your doctors consider you to be active multiple myeloma versus smoldering mm, seeing that you have had a harvest of stem cells already? Have they shared their plan for you, yet?
Ginger

REPLY
@gingerw

@coynelane I echo the welcome to Mayo Clinic Connect.

I just finished round 10 of Revlimid, at a very low dose. Due to other health issues, we are taking a very slow approach to this, in order to not have my kidneys fail. Curiosity has me asking if your doctors consider you to be active multiple myeloma versus smoldering mm, seeing that you have had a harvest of stem cells already? Have they shared their plan for you, yet?
Ginger

Jump to this post

Thank you for your greeting. My status is smoldering myeloma. The purpose for stem cell collection was to have stem cells available in the event I might need a transplant in the future. Furthermore, the collection needed to be completed before prolonged Revlimid treatment would make it difficult to collect sufficient stem cells. The current plan is to complete 24 cycles of Revlimid. My doctor has not indicated the plan after 24 cycles, and I will inquire about his thoughts at my next appointment.

REPLY
Please sign in or register to post a reply.
  Request Appointment