Connect
Public Support Group 208 total results
Discussions (16)
Vidaza, keep going or stop
Mom is 85. She started on Vidaza beginning of May. Her blast count was at 11. After the 4th treatment, the blast count was at...
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
Newly diagnosed MDS-IB2 and vidaza
Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?
After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...
Anyone take Vidaza and Venetoclax for Acute Myeloid Leukemia (AML)?
Has anyone took vidaza and venclexta..then after time just took venetoclax orally and no vidiaza
I'm about to begin treatments with Vidaza, what should I know?
I'm about to begin treatments with Vidaza. Does anyone have any experiences they can share about their success, or what I should be prepared for?
MDS now progressing to AML and need to decide if time to start Vidaza
My 67 yr old sister has been in the hospital since June 3rd and I have to make a decision for her. She was diagnosed...
My husband has started taking Vonjo, has anyone taken Vonjo?
My husband has myelofibrosis. Was taking Vidaza it worked for a while. His Doctor started him on Vonjo, does anyone have experience with Vonjo.
MDS with sideroblasts and trying Lospatercept or Elritercept?
Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?
Leukemia CMML-2
I was just diagnosed with CMML-2 with my Blast count at 15%...Looking for any advise or experience out there...I am about to start chemo with...
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
Has anyone had hearing loss after Azacitidine injections?
My husband was recently diagnosed with MDS-IB2, a total shock to us. We found out on a Friday and he started Vidaza on Monday. He...
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!
My 75 year old husband was diagnosed with AML on 7/19/23, after one month of worsening shortness of breath. He was scheduled for a cardiac...
AML successful treatment
Happy New Year! I want to share a happy treatment update for my wonderful response to Venetoclax and Dacogen (similar to Vidaza) for treatment of...
Connect