Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
133 total results
Discussions (10)
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
Last active: Sep 30, 2024
Newly diagnosed MDS-IB2 and vidaza
Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...
Last active: Dec 19, 2024
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
Last active: Mar 10 7:35pm
Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?
After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...
Last active: 2 days ago
I'm about to begin treatments with Vidaza, what should I know?
I'm about to begin treatments with Vidaza. Does anyone have any experiences they can share about their success, or what I should be prepared for?
Last active: 7 hours ago
Leukemia CMML-2
I was just diagnosed with CMML-2 with my Blast count at 15%...Looking for any advise or experience out there...I am about to start chemo with...
Last active: Nov 15, 2018
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
Last active: Feb 21 6:33am
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Last active: Sep 1, 2024
Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!
My 75 year old husband was diagnosed with AML on 7/19/23, after one month of worsening shortness of breath. He was scheduled for a cardiac...
Last active: Feb 28 3:47pm
AML successful treatment
Happy New Year! I want to share a happy treatment update for my wonderful response to Venetoclax and Dacogen (similar to Vidaza) for treatment of...
Last active: Apr 4 10:13am