Blood Cancers & Disorders Support Group

Three weeks ago I had the shingles. I had a Chickenpox over 50 years ago. Is there any reason to worry when that virus became...

Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I...

I was diagnosed with MGUS the Fall of 2023. Recently I am experiencing severe pain in my right knee, left ankle and now my neck/shoulders....

Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite)...

Hey I have been sick for quite sometime having bone pain and low iron levels and I had bleeding in my stomach previously they said...

Hi. I’ve been told that my MGUS case is rare, and I’ve been undergoing chemotherapy treatments for for about 8 months after failed steroid treatments....

I have had Sjogren’s for years and was recently diagnosed with MGUS. My IgM is high. I understand that 22% of Sjogren’s patients develop MGUS....

Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist. I have also got some rash in...

I started having health issues when I was a very young gal around 4. I was told at a plasma center when I was 18...

I'm a teacher for special education in two small elementary schools (ages 7-13). I've 12 years left to retired. Asthma, Bronchodilation and MGUS cause susceptibility...

My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...

I am wondering if anyone knows how drinking decaf or regular coffee might affect MGUS and its progression. I am willing to cut out coffee...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...

I’ve had 10 broken bones since Christmas. Some are with no falls to explain them, and I’ve been diagnosed with severe osteoporosis as a result....

Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...

Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...

Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...

Hello. I have not been diagnosed with MGUS, but I'm very confused about the criteria. I have been under the care of a hematologist for...

What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...