Blood Cancers & Disorders Support Group

I was diagnosed with MGUS the Fall of 2023. Recently I am experiencing severe pain in my right knee, left ankle and now my neck/shoulders....

Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I...

Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite)...

I am wondering if anyone knows how drinking decaf or regular coffee might affect MGUS and its progression. I am willing to cut out coffee...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...

Hey I have been sick for quite sometime having bone pain and low iron levels and I had bleeding in my stomach previously they said...

Hi. I’ve been told that my MGUS case is rare, and I’ve been undergoing chemotherapy treatments for for about 8 months after failed steroid treatments....

I was diagnosed with MGUS a few years ago and my oncologist monitors my bloodwork regularly. Earlier this year I developed a compression fracture in...

I’ve had 10 broken bones since Christmas. Some are with no falls to explain them, and I’ve been diagnosed with severe osteoporosis as a result....

I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...

I'm a teacher for special education in two small elementary schools (ages 7-13). I've 12 years left to retired. Asthma, Bronchodilation and MGUS cause susceptibility...

I started having health issues when I was a very young gal around 4. I was told at a plasma center when I was 18...

Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist. I have also got some rash in...

I was diagnosed with both MGUS ( had a Pet scan and a bone marrow biopsy) and Rheumatoid Arthritis in 2022. I am currently on...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...

I have had Sjogren’s for years and was recently diagnosed with MGUS. My IgM is high. I understand that 22% of Sjogren’s patients develop MGUS....

Other than bone biopsy, are there any other tests that definitively rule out amyloids?

Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...

My husband was diagnosed with MGUS in late 2024 and has lab work done every six months. My concern is the pain he has in...