Blood Cancers & Disorders Support Group

Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I...

Three weeks ago I had the shingles. I had a Chickenpox over 50 years ago. Is there any reason to worry when that virus became...

Hi. I’ve been told that my MGUS case is rare, and I’ve been undergoing chemotherapy treatments for for about 8 months after failed steroid treatments....

Hey I have been sick for quite sometime having bone pain and low iron levels and I had bleeding in my stomach previously they said...

Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist. I have also got some rash in...

I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda, M proteins came up very high. He had a...

My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

I started having health issues when I was a very young gal around 4. I was told at a plasma center when I was 18...

Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...

I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....

Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...

Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...

Wondering what dose and brand of curcumin others are using, as well as any specific contraindications and side effects? Thank you!

Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...

Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...

For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...

Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...