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Discussions (99)
Diagnosing MDS
As some of you may remember, this journey started for me "formally" (meaning it was caught then, but I had low platelets for at least...
MDS and thyroidectomy
I have MDS iso del 5q. Currently I'm just being monitored, with a slow decline in haemaglobin (currently 90). I also have a benign multinodular...
MDS and Neupogen
After an introductory stay in hospital about a year ago I have self injected expensive stuff, neupogen. One jab a week most of the time....
MDS and cognitive decline
Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?
Can MDS be hereditary?
Approximately 30 years ago, my husband's sister was suddenly diagnosed with a "blood disease" and lived less than 2 weeks after being diagnosed. She had...
IPSS Scores for MDS
Hi I am wondering if anyone can help me determine my IPSS score for MDS. I have a copy of my Bone Marrow Biopsy test...
Anyone dealing with MDS?
I have been anemic for three years and no cause has been indentified. MDS is the only thing that has been mentioned but not diagnosed....
MDS cancer support.
Does anyone have experience dealing with MDS mid stage. My husband and I would like to connect with anyone dealing with this cancer. He was...
UCARE coverage and MDS
We're looking for coverage for my husband. He has MDS MPN. We heard UCARE is good and covers well. Anyone have experience? We're in MN....
Neuroendocrine insulinoma and MDS
my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...
I have mds AND Parkinsons
I have Parkinson’s,I had bmt for leukaemia 16. Years agoThe cancer has returned as mdsAnyone else has
Looking for experiences with the progression of MDS
Good morning ,I am looking for shared experiences with the progression of MDS and or other blood cancer. What are signs and or symptoms to...
Living with MDS (Myelodyplastic Syndromes)
I finally got my answer to what I have and trying to wrap my mind around it.I am an ovarian cancer survivor of 20 years...
imetelstat/Rytelo MDS treatment anyone?
My husband has MDS & has been on luspatercept for almost 3 yrs. He is now transfusion dependent. His doc is going to start treatment...
Family member newly diagnosed with MDS
Hi everyone, I have a brother newly diagnosed with MDS. He has had low platelets in the 70,000 range for 7+ years and has been...
Myelodysplastic syndrome (MDS) and skin itching
what can be done for extreme itching from myelodysplasia
B12 deficiency mimicking MDS
4-months ago I went for a full blood workup, 1st one in 7-years. To my surprise my WBC was 1.6, Platelets 75, Hemoglobin level of...
What Caused MDS in My Case?
My doctor shies away from answering my questions about the probable cause of MDS in my case. I guess this is pretty normal for most...
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
Myelodysplastic Syndrome (MDS) classification and staging
Has anyone been given their classification of their MDS after they were diagnosed? I saw this info on the Mayo clinic website. Barbara
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