456 total results
Discussions (36)
Living with MDS
I finally got my answer to what I have and trying to wrap my mind around it. I am an ovarian cancer survivor of 20...
MDS and Neupogen
After an introductory stay in hospital about a year ago I have self injected expensive stuff, neupogen. One jab a week most of the time....
MDS and thyroidectomy
I have MDS iso del 5q. Currently I'm just being monitored, with a slow decline in haemaglobin (currently 90). I also have a benign multinodular...
MDS and cognitive decline
Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?
IPSS Scores for MDS
Hi I am wondering if anyone can help me determine my IPSS score for MDS. I have a copy of my Bone Marrow Biopsy test...
Looking for experiences with the progression of MDS
Good morning ,I am looking for shared experiences with the progression of MDS and or other blood cancer. What are signs and or symptoms to...
Low Platelets with Myelodysplastic Syndrome (MDS)
Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...
Mantle Cell Lymphoma and MDS (RARS)
Has anyone been treated for a combination of these? About 8 years I was diagnosed with MDS ( refractory anemia with ringed sideroblasts). Mantle cell...
Myelodysplastic syndrome (MDS) and skin itching
what can be done for extreme itching from myelodysplasia
Anyone dealing MDS and how are you doing?
Hello Anyone dealing with MDS and how long and how are you doing?
Anyone taking retacrit and releuko injections for MDS
My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?
Anyone have or heard of MDS with 5q-syndrome?
Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...
MDS: How to improve my condition in watch & wait?
I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
I have been diagnosed and under treatment for MDS
I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
MDS treatment options other than bone marrow transplant
I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?
Myelodysplastic syndromes (MDS): When do you need to start treatment?
Wen do you need to start treatments for this disorder an wat best treatments are there
MDS: Can someone explain how or why platelets go up or down quickly?
Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...