Blood Cancers & Disorders Support Group

As some of you may remember, this journey started for me "formally" (meaning it was caught then, but I had low platelets for at least...

I have MDS iso del 5q. Currently I'm just being monitored, with a slow decline in haemaglobin (currently 90). I also have a benign multinodular...

After an introductory stay in hospital about a year ago I have self injected expensive stuff, neupogen. One jab a week most of the time....

Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?

Hi I am wondering if anyone can help me determine my IPSS score for MDS. I have a copy of my Bone Marrow Biopsy test...

I have been anemic for three years and no cause has been indentified. MDS is the only thing that has been mentioned but not diagnosed....

We're looking for coverage for my husband. He has MDS MPN. We heard UCARE is good and covers well. Anyone have experience? We're in MN....

my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...

I finally got my answer to what I have and trying to wrap my mind around it.I am an ovarian cancer survivor of 20 years...

I have Parkinson’s,I had bmt for leukaemia 16. Years agoThe cancer has returned as mdsAnyone else has

Good morning ,I am looking for shared experiences with the progression of MDS and or other blood cancer. What are signs and or symptoms to...

Has anyone been given their classification of their MDS after they were diagnosed? I saw this info on the Mayo clinic website. Barbara

If you have MDS do you think it has anything to do with not sleeping all night? I wake up 3-4 am every night. I...

My husband has MDS & has been on luspatercept for almost 3 yrs. He is now transfusion dependent. His doc is going to start treatment...

4-months ago I went for a full blood workup, 1st one in 7-years. To my surprise my WBC was 1.6, Platelets 75, Hemoglobin level of...

Hi everyone, I have a brother newly diagnosed with MDS. He has had low platelets in the 70,000 range for 7+ years and has been...

what can be done for extreme itching from myelodysplasia

For the last 6 months I've been going to a Hematologist to determine the cause of my low WBC, low platelet count and low B12...

My doctor shies away from answering my questions about the probable cause of MDS in my case. I guess this is pretty normal for most...

My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...