Blood Cancers & Disorders Support Group

I was diagnosed with CML (chronic myelogenous leukemia) in March 2021. Although I have been taking Sprycel since being diagnosed, my BCR-ABL numbers have plateaued...

Jakafi has really helped with the itchy skin symptom of PV I suffered with, but I've noticed my weight steadily increasing to where I'm the...

I was diagnosed with polycythemia November 23, although it is likely I had it for a significant period prior. I tolerated the hydrea well for...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...

I have been taking Jakafi for five years with great symptom relief for PV. However I am starting to get a few symptoms again such...

What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?

I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...

I am 74 years old, female. Three years ago diagnosed with PV After five phlebotomies I was told my platelets were too high to continue....

Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage

Just wondering with regards medication in 2025 and what is being used to control ET in the modern world? Have done a little research and...

Two years ago I suffered a stress fracture of the tibia plateau while riding my bike through sand, since then I have 4 other stress...

I have recently been prescribed teriparatide as an adjunct to Prolia for the treatment of osteoporosis. I have had ET for 5 years and am...

Anyone out there that has all three of these conditions - how are your conditions managed and measured? Currently on Jakafi - iron/ferritin level rising...

My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...

I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....

INCA033989 is a new drug that targets the CALR mutation in patients with MPNs (especially ET and MF). Something to keep an eye on, especially...

After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

I am 71, active, and in relatively good health. I have ET and VW's, my platelet numbers are around 520 with treatment (Jakifi). Im scheduled...