Blood Cancers & Disorders Support Group

Jakafi has really helped with the itchy skin symptom of PV I suffered with, but I've noticed my weight steadily increasing to where I'm the...

I was diagnosed with CML (chronic myelogenous leukemia) in March 2021. Although I have been taking Sprycel since being diagnosed, my BCR-ABL numbers have plateaued...

I was diagnosed with polycythemia November 23, although it is likely I had it for a significant period prior. I tolerated the hydrea well for...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...

I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...

What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?

I have been taking Jakafi for five years with great symptom relief for PV. However I am starting to get a few symptoms again such...

I am 74 years old, female. Three years ago diagnosed with PV After five phlebotomies I was told my platelets were too high to continue....

Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage

Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...

Just wondering with regards medication in 2025 and what is being used to control ET in the modern world? Have done a little research and...

Two years ago I suffered a stress fracture of the tibia plateau while riding my bike through sand, since then I have 4 other stress...

I was diagnosed with PV JAK2 a year ago and have taken HU for six weeks, then had bone marrow biopsy that shows TET2 and...

Anyone out there that has all three of these conditions - how are your conditions managed and measured? Currently on Jakafi - iron/ferritin level rising...

I have recently been prescribed teriparatide as an adjunct to Prolia for the treatment of osteoporosis. I have had ET for 5 years and am...

My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...

After a long and stable treatment for Polycythemia Vera, my wife (age 73) has been diagnosed with High Risk Myelofibrosis. Just one month ago we...

I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....

INCA033989 is a new drug that targets the CALR mutation in patients with MPNs (especially ET and MF). Something to keep an eye on, especially...

After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...