Blood Cancers & Disorders Support Group

Hi everyone, Can you please tell me how to manage macular amyloidosis.. The pigmentation is increasing slowly and i am super stressed out.. Please help

I’m 57 years old and my health started to become problematic in my mid 40’s, but 9 years ago, things really picked up pace. I...

Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?

Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...

Hi everyone. This is my first time posting. My father has recently been diagnosed with AL Amyloidosis, and I have a lot of barely-formed questions...

I have recently been diagnosed with Amyloidosis, although I don’t know yet what type I have. They sent my biopsy sample to the Mayo Clinic...

61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...

I was diagnosed 3 years ago with AL Amyloidosis, along with Factor X deficiency. I was told the Factor X deficiency was very, very rare...

Hello. I need help/advice...36 M For the last 6 months I am having these health issues. To be more specific, I think it all started...

My husband was diagnosed with smothering myeloma and Al amoloyd in his heart. He served 20 years in the military and now this

Hello my name is Ronda. I was just diagnosed with cardiac amyloid and have just had a bone marrow biopsy for multiple myloema. Still waiting...

I have Amyloidosis AL as my primary condition. I was diagnosed just over 2 years ago. Had weekly chemo for 6 months…..now in remission. I...

Recent carpal tunnel release found amyloidosis but insufficient tissue for biopsy. I live near Des Moines and she wants to send me to a cardiologist....

I was diagnosed with myeloma quite by chance at a routine neuro appointment a year ago. My current diagnosis is Amyloidosis and multiple myeloma I...

Diagnosed 3 years ago with Al Amyloidosis. On faspro and dex. Numbers were stalled for a year but suddenly are climbing. I feel like I'm...

My mom was recently diagnosed w AL Amyloidosis, our local hospital missed some important tests . We just had our first trip to Mayo. I...

My best friend was recently diagnosed with Amyloidosis and would like to get a second opinion. What kind of specialist should she look for?

Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.

Diagnosed with AL amyloidosis through blood tests- 77 years old - is a kidney biopsy necessary? I chose not to do it but am re-thinking....

Hello. My dad was recently diagnosed with AL Amyloidosis. We live in northcentral WI and he is ready to take a step up in the...