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Public Support Group 2,496 total results
Discussions (142)
Smoldering Multiple Myeloma (SMM). Questions and Answers
I wanted to start a discussion specifically on SMM. Asking specific questions about time of diagnosis, like age, m-spike level, protein in urine level and...
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Need help understanding the readings
Hi a few months of knowing I have MGUS and blood levels seem stable however, my recent phone appointment was a lovely lady but not...
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Does anyone know how an FLC ratio of less than .1 effects the risk of
I was diagnosed with MGUS IgG lambda in June 2023 while having bloodwork for a DVT. I then had an ischemic attack in July 2023....
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
Kappa/Lambda now 75, PET scan then likely I-VRD for 4 mo
My 10 years of IgA Kappa MGUS started ramping up 3 years ago. I get a whole body PET scan and repeat of my bloodwork...
A Pint of Sweat, Saves a Gallon of Blood
That's from George Patton I have a bloody dilemma. I have chronic anemia, although my iron levels are fine. I have MGUS, which I am...
M-spike drops drastically in 90 days any thoughts?
I recently saw my M-Spike drop from 1.4g/dL to .86g/dL in 90 days. Also my IGG dropped drastically as well. I have IGG Kappa MGUS.Any...
Has anyone been diagnosed with Livedo Reticularis or Sneddon Syndrome?
I started showing the lacey purple/red pattern on my legs in June 2021. No one had a clue what was wrong with me. In Dec,...
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
Poorly differentiated carcinoma unknown primary (CUP)
I feel as though I’m searching for an answer that that doesn’t exist. I hope someone can shed some light based on their experience.Here is...
Looking for guidance...possible amyloidosis?
Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...
possible Myeloma ? big shocking surprise !!
Just received 2nd blood work results .... Quest's 1st blood work "Interpretation" was Possible monoclonal protein (M-protein) present. Suggest serum immunofixation. Had 2nd blood work...
In regard to lab results
Hi! I’m new here. I just want to get some insight on my lab results. I went to my hematologist to get some lab work...
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