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Blood Cancers & Disorders Support Group

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Discussions (132)
Does anyone know how an FLC ratio of less than .1 effects the risk of
I was diagnosed with MGUS IgG lambda in June 2023 while having bloodwork for a DVT. I then had an ischemic attack in July 2023....
Last active: Jun 19, 2025
Poorly differentiated carcinoma unknown primary (CUP)
I feel as though I’m searching for an answer that that doesn’t exist. I hope someone can shed some light based on their experience.Here is...
Support Group: Cancer
Last active: Jun 23 11:47am
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Apr 25, 2025
Kappa/Lambda now 75, PET scan then likely I-VRD for 4 mo
My 10 years of IgA Kappa MGUS started ramping up 3 years ago. I get a whole body PET scan and repeat of my bloodwork...
Last active: Jan 19 2:10pm
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
Last active: Apr 30, 2025
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
A Pint of Sweat, Saves a Gallon of Blood
That's from George Patton I have a bloody dilemma. I have chronic anemia, although my iron levels are fine. I have MGUS, which I am...
Last active: Feb 29, 2024
Looking for guidance...possible amyloidosis?
Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...
Last active: Dec 24, 2025
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
Last active: Jan 6, 2024
possible Myeloma ? big shocking surprise !!
Just received 2nd blood work results .... Quest's 1st blood work "Interpretation" was Possible monoclonal protein (M-protein) present. Suggest serum immunofixation. Had 2nd blood work...
Last active: Nov 18, 2022
In regard to lab results
Hi! I’m new here. I just want to get some insight on my lab results. I went to my hematologist to get some lab work...
Last active: Jun 23, 2025
Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...
Last active: Aug 12, 2024