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Discussions (129)
M-spike dropped from .13 to .08.
I’m seeing this as a good sign after being officially dx. w/MGUS 10/24. All my other blood work was good except my beta % was...
Last active: May 6, 2025
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: 5 days ago
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
iSTOPMM study and the AI basics
Using technology I did an AI rundown of the iSTOPMM study (take it with a grain of salt) Key Findings & Results: MGUS & SMM...
Last active: Dec 19, 2025
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Last active: Jul 19, 2025
Smoldering Multiple Myeloma (SMM). Questions and Answers
I wanted to start a discussion specifically on SMM. Asking specific questions about time of diagnosis, like age, m-spike level, protein in urine level and...
Last active: 3 days ago
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17, 2024
Essential tremors? Any tricks for making less?
I have been positive for MGUS since 2016 and it is starting to progress but one of the things driving me nuts is essential tremors....
Last active: Dec 6, 2025
Multiple lymph nodes throughout body
I have a history of MGUS which was diagnosed after a T6 vertebral compression fracture. Dexa shows mild osteopenia. Now I noticed multiple lymph nodes...
Last active: May 21, 2025
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: Mar 25 6:44am
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12, 2024
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
Last active: Apr 4, 2025
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Last active: Apr 23, 2025
Need help understanding the readings
Hi a few months of knowing I have MGUS and blood levels seem stable however, my recent phone appointment was a lovely lady but not...
Last active: Aug 22, 2025
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Aug 14, 2025
Does anyone know how an FLC ratio of less than .1 effects the risk of
I was diagnosed with MGUS IgG lambda in June 2023 while having bloodwork for a DVT. I then had an ischemic attack in July 2023....
Last active: Jun 19, 2025
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Apr 25, 2025
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Mar 25 8:22am