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Discussions (142)
Elevated alpha 2 globulin with usual elevated IgG kappa MGUS
What might lower slightly elevated alpha 2 globulin in context of mildly increased IgG kappa? I take 800 mg tumeric
Last active: Mar 12 9:49am
MGUS monitoring: What tests do you have done regularly?
I was diagnosed with MGUS about a year ago. They have been screening with labs. I’ve noticed some MGusers have bone marrow tests and some...
Last active: Aug 11 11:47pm
What to do? Anyone with MGUS having Gum and bone loss and foot pain
What to do? Anyone with gum and bone loss and foot actually toe pain? My dentist referred me to periodontist and asked if I have...
Last active: Oct 26, 2025
Long term MGUS: What changes have you had? Do's and Don'ts?
Hello everyone,You can call me Freespirit! I was diagnosed with Monoclonal Gammopathy of Undetermined Significance (MGUS) in 2021. Has anyone here had it that long?...
Last active: Mar 7 10:28pm
MGUS: Should I be concerned that my eGFR dropped from 77 to 57
I was diagnosed with MGUS 2 years ago when I was being tested for some sudden heart issues. I have testing every 6 months. I...
Last active: Oct 25, 2024
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Sep 27, 2025
M-spike dropped from .13 to .08.
I’m seeing this as a good sign after being officially dx. w/MGUS 10/24. All my other blood work was good except my beta % was...
Last active: May 6, 2025
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
iSTOPMM study and the AI basics
Using technology I did an AI rundown of the iSTOPMM study (take it with a grain of salt) Key Findings & Results: MGUS & SMM...
Last active: Dec 19, 2025
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: Apr 19 11:28pm
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: Sep 24 8:23am
No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Last active: Jul 19, 2025
Oncology doctors and experiences
Hello, I had MGUS for 4 years. I was diagnosed with CLL in December 2025. This was through bloodwork and a bone biopsy. My oncologist...
Last active: Sep 16 12:45pm
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17, 2024
Essential tremors? Any tricks for making less?
I have been positive for MGUS since 2016 and it is starting to progress but one of the things driving me nuts is essential tremors....
Last active: Dec 6, 2025
increase in kappa free light chains and in ratio with lambda Lt chains
I was diagnosed with MGUS 6 1/2 years ago. Recently the kappa free light chains have increased a fair amount. The monoclonal Band #1 ELP...
Last active: Jul 6 3:30pm
Multiple lymph nodes throughout body
I have a history of MGUS which was diagnosed after a T6 vertebral compression fracture. Dexa shows mild osteopenia. Now I noticed multiple lymph nodes...
Last active: May 21, 2025
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: May 31 9:59am