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Discussions (123)
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Multiple lymph nodes throughout body
I have a history of MGUS which was diagnosed after a T6 vertebral compression fracture. Dexa shows mild osteopenia. Now I noticed multiple lymph nodes...
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
Need help understanding the readings
Hi a few months of knowing I have MGUS and blood levels seem stable however, my recent phone appointment was a lovely lady but not...
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Does anyone know how an FLC ratio of less than .1 effects the risk of
I was diagnosed with MGUS IgG lambda in June 2023 while having bloodwork for a DVT. I then had an ischemic attack in July 2023....
Looking for guidance...possible amyloidosis?
Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
A Pint of Sweat, Saves a Gallon of Blood
That's from George Patton I have a bloody dilemma. I have chronic anemia, although my iron levels are fine. I have MGUS, which I am...
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
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