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Discussions (103)
Anyone else diagnosed with 'aCLL' - rare variation?
I was diagnosed with CLL in 2021 and put on 'watch and wait'. A swollen lymph node biopsy this year led to a finding of...
Last active: Sep 16 11:08am
Heard of HealthTree Cure Hub?
I just had an hour-long online walk thru of the HealthTree Cure Hub website (https://healthtree.org/curehub). I was wondering if anyone is a member here. This...
Last active: Jul 19, 2025
Latest blood draw
I just received the results of my latest blood draw and am curious if anyone here who has had CLL had their diagnosis change to...
Last active: Jun 3, 2025
Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...
Last active: Mar 13 9:25am
How to handle Extreme Tiredness?
I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....
Last active: May 4, 2023
Sudden weight loss and decrease in appetite
My Mom was diagnosed with CLL last January. Late January of this year she went to her doctor because she was weak and was losing...
Last active: Mar 20 12:06pm
Anyone taking obinutuzumab + Calquence (acalabrutinib) and venetoclax?
I was diagnosed with CLL Dec, 2024. My Hematologist wants me to start on a combination of Obinutuzumab, Acalabrutinib along with Ventoclax. These are powerful...
Last active: Sep 20 2:24pm
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Last active: Apr 19, 2025
Diagnosed with small lymphocytic lymphoma (SLL)
I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...
Last active: Dec 11, 2023
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Last active: Aug 13, 2023
Timing of Calquence and Venclexta
Hi All! I was diagnosed with CLL/SLL in 2022 and started the watch and wait process. Since then, I've had a successful esophagectomy for esophageal...
Last active: Jun 21 10:40am
Finding the right cancer care team
Hello,I will be going to my 2nd visit with the hematologist/oncologist I was referred to by my PCP. My question is how did other people...
Last active: Mar 6, 2024
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Please Share Your Experience With Obinutuzumab Infusion
My husband has been dx with CLL. After a bone marrow biopsy his hematologist recommended starting the treatment. There is an option of taking Brukinsa,...
Last active: Apr 13 11:41am
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
Last active: Dec 3, 2025
Can anyone advise about what insurance best covers immunotherapies?
I'm about to have a career transition. Into what, I don't yet know. I want to choose something that will provide the best possible coverage...
Last active: May 5, 2025
Calquence and depression
I have CLL and have been on Calquence for about 14 months. 8 months ago out of the blue I started getting severely depressed. I...
Last active: Aug 17 8:28pm
Hairy Cell Leukemia: What were your symptoms before treatment?
Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...
Last active: Mar 12, 2024
Haptoglobin RBC major issues
My rbc labs getting worse. Haptoglobin is now 2.7 when low is 65!!!! I have felt I'm highly anemic. Docs don't see it. I have...
Last active: Sep 11, 2023
Has anyone lost fingers/toes to B cell antibodies impacting Platelets
I had all my fingers & one toe amputated due to B cells creating antibodies that impacted my platelets & stopped my capillaries from my...
Last active: Sep 30, 2025