Blood Cancers & Disorders Support Group

I was diagnosed with CLL in 2021 and put on 'watch and wait'. A swollen lymph node biopsy this year led to a finding of...

I just received the results of my latest blood draw and am curious if anyone here who has had CLL had their diagnosis change to...

I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...

I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....

My Mom was diagnosed with CLL last January. Late January of this year she went to her doctor because she was weak and was losing...

I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...

I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...

I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...

My husband has been dx with CLL. After a bone marrow biopsy his hematologist recommended starting the treatment. There is an option of taking Brukinsa,...

Hello,I will be going to my 2nd visit with the hematologist/oncologist I was referred to by my PCP. My question is how did other people...

I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...

I'm about to have a career transition. Into what, I don't yet know. I want to choose something that will provide the best possible coverage...

Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...

Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...

My rbc labs getting worse. Haptoglobin is now 2.7 when low is 65!!!! I have felt I'm highly anemic. Docs don't see it. I have...

I had all my fingers & one toe amputated due to B cells creating antibodies that impacted my platelets & stopped my capillaries from my...

Hello Lori and all of you, sorry to have been gone so long, lost my password and finally gave up looking for it. I have...

My husband was diagnosed with myasthenia gravis and CLL 3 years ago and was recently diagnosed with melanoma in December. He had a mole on...