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Blood Cancers & Disorders Support Group

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Discussions (93)
MGUS: Please, let me know I not alone
i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...
Last active: Feb 16 4:14pm
Anyone been denied life insurance based on your MGUS dx?
My life insurance is about to time out. I’d like to get a policy to help tidy up things if I die the next 10...
Last active: Jun 23, 2023
Does anyone have any info on MGUS treatment or risk of progression?
Hi all, I'm Nick, I'm 37 from the UK. I've just been diagnosed with MGUS. My M-spike is 1.3g d/l and everything else is normal....
Last active: Nov 13, 2023
Does plant-based eating lower chances of MGUS progressing to myeloma?
Hi. I was diagnosed with MGUS. I heard that diet, especially a plant based diet can slow the progression of MGUS. Has anyone changed their...
Last active: Nov 17, 2024
MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with...
Last active: Mar 29 2:16pm
Anyone else been diagnosed with CVID and MGUS and have multiple cancer
I had squamous cell carcinoma of the cervix and had surgery that removed everything except my right ovary. Then had Igg. After remission though I...
Last active: Feb 15, 2024
MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?
Is there anyone who was diagnosed with MGUS, SMM or MM who also experienced chronic diarrhea or other GI issues before treatment as one of...
Last active: Mar 21, 2024
MGUS diet: Any tips on food to enjoy or prevent progression?
Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more...
Last active: Sep 3, 2024
Does MGUS cause red blood cells (RBCs) to drop?
I was diagnosed in June with Mgus. I am so fatigued and weak. RBCs dropped to below normal. Dr. blows me off-“eat red meat and...
Last active: Oct 16, 2024
Can being over normal BMI weight cause MGUS to progress faster?
I was wondering how many of you have heard that being over the normal weight in the BMI can cause MGUS to progress faster. I...
Last active: Nov 29, 2024
MGUS monitoring: What tests do you have done regularly?
I was diagnosed with MGUS about a year ago. They have been screening with labs. I’ve noticed some MGusers have bone marrow tests and some...
Last active: Dec 30, 2024
How high has anyone seen Lambda free light chain go with Mgus?
Going in Sept 3 for Bone marrow test .. symptom free but with accidentally finding of Lambda free light chain serum test 1200.6 with Kappa...
Last active: Sep 22, 2024
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Feb 27, 2024
MGUS: Should I be concerned that my eGFR dropped from 77 to 57
I was diagnosed with MGUS 2 years ago when I was being tested for some sudden heart issues. I have testing every 6 months. I...
Last active: Oct 25, 2024
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: Nov 10, 2024
No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Last active: Apr 4 1:59am
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
Last active: Apr 4 9:51am
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17, 2024