Connect
Public Support Group 2,496 total results
Discussions (142)
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Resources for MGUS: What reading is helpful for the newly diagnosed?
I am recently diagnosed. Could you tell me what resources or reading might be helpful. Also, has anyone heard that coffee is not good for...
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
MGUS Symptoms: What symptoms did you experience?
I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...
Mildly Hypocellular bone marrow (40% cellularity) with MGUS
Hello all. I am 24 years old, male. I was diagnosed with MGUS in December 2021. Since then, My M protein has gone from 0.3...
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Can weight gain cause progression from MGUS to myeloma?
I have been diagnosed with MGUS. I have read that weight gain can cause progression from MGUS to MM. I’ve gained quite a bit I...
Looking for advice: Could this be MGUS, because of low m-spike?
Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...
Diagnosed with MGUS. What questions should I ask the hematologist?
Recently diagnosed with MGUS and am having my first appointment with the referred hematologist. I would like to be prepared with the right questions to...
Seeking advice: MGUS and osteoporosis with severe bone pain?
When one has MGUS and osteoporosis that is causing immense bone pain especially in the joints and large bones, plus tingling and muscle spasms, what...
Should I Be Concerned? Blood test suggestive of MGUS
A year ago, I was sent to a nephrologist for hematuria, creatinine clearance by Cockcroft-Gault of 52, creatinine 1.24. He did some blood test that...
MGUS I need help understanding my lab report.
I've had MGUS for about 10 years, give or take. Next year, I'll be 80. Since I've been dealing with other issues: coronary artery disease...
Anybody diagnosed with MGUS in their 20s, 30s, 40s?
Anybody diagnosed with MGUS in their 20s, 30s or 40s, and has had it for more than 10-15 yrs? Has your lab results improved or...
Starting MGUS journey: It feels like the "in limbo" disease
Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Anyone with MGUS, do you have joint pain?
Anyone has MGUS are you having joint pain?
MGUS: Please, let me know I not alone
i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...
MGUS and Myasthenia Gravis - does anyone have both?
Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...
Does plant-based eating lower chances of MGUS progressing to myeloma?
Hi. I was diagnosed with MGUS. I heard that diet, especially a plant based diet can slow the progression of MGUS. Has anyone changed their...
Connect