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Blood Cancers & Disorders Support Group

Public Support Group
1,545 total results
Discussions (81)
MGUS diet: Any tips on food to enjoy or prevent progression?
Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more...
Last active: Sep 3 4:57pm
MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with...
Last active: Aug 3 1:59pm
How high has anyone seen Lambda free light chain go with Mgus?
Going in Sept 3 for Bone marrow test .. symptom free but with accidentally finding of Lambda free light chain serum test 1200.6 with Kappa...
Last active: Sep 22 12:10pm
MGUS: Should I be concerned that my eGFR dropped from 77 to 57
I was diagnosed with MGUS 2 years ago when I was being tested for some sudden heart issues. I have testing every 6 months. I...
Last active: Oct 25 3:37pm
MGUS monitoring: What tests do you have done regularly?
I was diagnosed with MGUS about a year ago. They have been screening with labs. I’ve noticed some MGusers have bone marrow tests and some...
Last active: Dec 23, 2022
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Feb 27 11:51pm
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: Nov 10 6:24pm
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
Lymphedema and Waldenstroms Macroglobulinemia
Has anyone else been diagnosed with MGUS (I had M spike) and then Waldenstroms Macroglobulinemia with MYD88 gene mutation (after undergoing bone marrow biopsy -...
Last active: Nov 8 9:09am
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12 7:50pm
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17 8:33am
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Oct 29 3:16pm
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Dec 27, 2018
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Apr 13 8:57am
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
A Pint of Sweat, Saves a Gallon of Blood
That's from George Patton I have a bloody dilemma. I have chronic anemia, although my iron levels are fine. I have MGUS, which I am...
Last active: Feb 29 3:59pm
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
Last active: Jan 6 12:52pm
possible Myeloma ? big shocking surprise !!
Just received 2nd blood work results .... Quest's 1st blood work "Interpretation" was Possible monoclonal protein (M-protein) present. Suggest serum immunofixation. Had 2nd blood work...
Last active: Nov 18, 2022