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Discussions (107)
Diagnosed with MGUS. What questions should I ask the hematologist?
Recently diagnosed with MGUS and am having my first appointment with the referred hematologist. I would like to be prepared with the right questions to...
Looking for advice: Could this be MGUS, because of low m-spike?
Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...
MGUS and Myasthenia Gravis - does anyone have both?
Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...
Anyone with MGUS, do you have joint pain?
Anyone has MGUS are you having joint pain?
MGUS: Please, let me know I not alone
i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...
Does anyone know of bruising as a progressing symptom of mgus to MM?
I am 42, diagnosed with Mgus IgA 2 years ago. My numbers are just below shouldering myeloma and now being followed every 6 months at...
How can I support my immune system with MGUS?
How can I support my immunity with mgus? Is there any treatments to support my immunity or what can I do myself? I'll get all...
Polycythemia Vera, lupus, MGUS more. Can't find MM oncologist
Hi All. Finally have formal diagnosis on several things. See title. Plus CHIP and chronic anemia. I can't find care. Not sure what to do....
Anyone been denied life insurance based on your MGUS dx?
My life insurance is about to time out. I’d like to get a policy to help tidy up things if I die the next 10...
Have MGUS and just caught Covid: Did Covid affect your numbers?
I was just diagnosed with Covid and was diagnosed with MGUS about a year ago. I am wondering if anyone has had Covid with MGUS...
Does anyone have any info on MGUS treatment or risk of progression?
Hi all, I'm Nick, I'm 37 from the UK. I've just been diagnosed with MGUS. My M-spike is 1.3g d/l and everything else is normal....
Does plant-based eating lower chances of MGUS progressing to myeloma?
Hi. I was diagnosed with MGUS. I heard that diet, especially a plant based diet can slow the progression of MGUS. Has anyone changed their...
Any concerns if you have MGUS and need joint replacement surgery?
I have read that joint replacements can raise risk of MM. Has anyone with MGUS had any issues with the surgery?
MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?
Is there anyone who was diagnosed with MGUS, SMM or MM who also experienced chronic diarrhea or other GI issues before treatment as one of...
MGUS diet: Any tips on food to enjoy or prevent progression?
Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more...
Does MGUS cause red blood cells (RBCs) to drop?
I was diagnosed in June with Mgus. I am so fatigued and weak. RBCs dropped to below normal. Dr. blows me off-“eat red meat and...
Anyone else been diagnosed with CVID and MGUS and have multiple cancer
I had squamous cell carcinoma of the cervix and had surgery that removed everything except my right ovary. Then had Igg. After remission though I...
Can being over normal BMI weight cause MGUS to progress faster?
I was wondering how many of you have heard that being over the normal weight in the BMI can cause MGUS to progress faster. I...
MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with...
MGUS monitoring: What tests do you have done regularly?
I was diagnosed with MGUS about a year ago. They have been screening with labs. I’ve noticed some MGusers have bone marrow tests and some...
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