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Discussions (129)
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Last active: Apr 7, 2023
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Last active: Nov 28, 2025
Can weight gain cause progression from MGUS to myeloma?
I have been diagnosed with MGUS. I have read that weight gain can cause progression from MGUS to MM. I’ve gained quite a bit I...
Last active: May 27, 2025
Looking for advice: Could this be MGUS, because of low m-spike?
Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...
Last active: Jan 28 9:48am
Diagnosed with MGUS. What questions should I ask the hematologist?
Recently diagnosed with MGUS and am having my first appointment with the referred hematologist. I would like to be prepared with the right questions to...
Last active: Jun 1, 2025
MGUS I need help understanding my lab report.
I've had MGUS for about 10 years, give or take. Next year, I'll be 80. Since I've been dealing with other issues: coronary artery disease...
Last active: Jan 20, 2024
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Nov 12, 2025
Anybody diagnosed with MGUS in their 20s, 30s, 40s?
Anybody diagnosed with MGUS in their 20s, 30s or 40s, and has had it for more than 10-15 yrs? Has your lab results improved or...
Last active: Jul 28, 2025
Seeking advice: MGUS and osteoporosis with severe bone pain?
When one has MGUS and osteoporosis that is causing immense bone pain especially in the joints and large bones, plus tingling and muscle spasms, what...
Last active: Jan 9 11:19am
Should I Be Concerned? Blood test suggestive of MGUS
A year ago, I was sent to a nephrologist for hematuria, creatinine clearance by Cockcroft-Gault of 52, creatinine 1.24. He did some blood test that...
Last active: Jun 2, 2025
Does plant-based eating lower chances of MGUS progressing to myeloma?
Hi. I was diagnosed with MGUS. I heard that diet, especially a plant based diet can slow the progression of MGUS. Has anyone changed their...
Last active: May 7, 2025
Does anyone have any info on MGUS treatment or risk of progression?
Hi all, I'm Nick, I'm 37 from the UK. I've just been diagnosed with MGUS. My M-spike is 1.3g d/l and everything else is normal....
Last active: Jul 29, 2025
Anyone been denied life insurance based on your MGUS dx?
My life insurance is about to time out. I’d like to get a policy to help tidy up things if I die the next 10...
Last active: Jul 21, 2025
Starting MGUS journey: It feels like the "in limbo" disease
Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...
Last active: Jan 23 6:03pm
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Last active: Feb 5 11:30am
MGUS and Myasthenia Gravis - does anyone have both?
Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...
Last active: Dec 18, 2024
MGUS: Please, let me know I not alone
i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...
Last active: Feb 16, 2025
Polycythemia Vera, lupus, MGUS more. Can't find MM oncologist
Hi All. Finally have formal diagnosis on several things. See title. Plus CHIP and chronic anemia. I can't find care. Not sure what to do....
Last active: May 28, 2025
How can I support my immune system with MGUS?
How can I support my immunity with mgus? Is there any treatments to support my immunity or what can I do myself? I'll get all...
Last active: Feb 26, 2025