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Discussions (128)
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...
Last active: Oct 16, 2023
MGUS Symptoms: What symptoms did you experience?
I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...
Last active: Oct 31, 2025
Starting MGUS journey: It feels like the "in limbo" disease
Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...
Last active: Jan 23 6:03pm
Looking for advice: Could this be MGUS, because of low m-spike?
Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...
Last active: Jan 28 9:48am
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Last active: Mar 28, 2024
Resources for MGUS: What reading is helpful for the newly diagnosed?
I am recently diagnosed. Could you tell me what resources or reading might be helpful. Also, has anyone heard that coffee is not good for...
Last active: Sep 22, 2024
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Nov 12, 2025
Anybody diagnosed with MGUS in their 20s, 30s, 40s?
Anybody diagnosed with MGUS in their 20s, 30s or 40s, and has had it for more than 10-15 yrs? Has your lab results improved or...
Last active: Jul 28, 2025
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Last active: 15 hours ago
Should I Be Concerned? Blood test suggestive of MGUS
A year ago, I was sent to a nephrologist for hematuria, creatinine clearance by Cockcroft-Gault of 52, creatinine 1.24. He did some blood test that...
Last active: Jun 2, 2025
41 yo female recently diagnosed with MGUS, looking for support
Just got diagnosed with MGUS type IgG lambda. I’m a 41 year old female. My free lite chain ratio is normal and my m protein...
Last active: Jan 23 5:56pm
MGUS I need help understanding my lab report.
I've had MGUS for about 10 years, give or take. Next year, I'll be 80. Since I've been dealing with other issues: coronary artery disease...
Last active: Jan 20, 2024
Can weight gain cause progression from MGUS to myeloma?
I have been diagnosed with MGUS. I have read that weight gain can cause progression from MGUS to MM. I’ve gained quite a bit I...
Last active: May 27, 2025
Diagnosed with MGUS. What questions should I ask the hematologist?
Recently diagnosed with MGUS and am having my first appointment with the referred hematologist. I would like to be prepared with the right questions to...
Last active: Jun 1, 2025
MGUS and Myasthenia Gravis - does anyone have both?
Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...
Last active: Dec 18, 2024
MGUS: Please, let me know I not alone
i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...
Last active: Feb 16, 2025
Does anyone know of bruising as a progressing symptom of mgus to MM?
I am 42, diagnosed with Mgus IgA 2 years ago. My numbers are just below shouldering myeloma and now being followed every 6 months at...
Last active: Aug 20, 2024
How can I support my immune system with MGUS?
How can I support my immunity with mgus? Is there any treatments to support my immunity or what can I do myself? I'll get all...
Last active: Feb 26, 2025
Anyone been denied life insurance based on your MGUS dx?
My life insurance is about to time out. I’d like to get a policy to help tidy up things if I die the next 10...
Last active: Jul 21, 2025