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Public Support Group 946 total results
Discussions (89)
With CLL what to do about night sweats and dry mouth?
I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks
CLL: Have you had chemo, ummunotherapy or other treatment?
My doctor discovered smudge cells as a pre-cursor to CLL in Dec. 2015. This spring of 2016, my lyphmocyte count put over the 5000 threshold...
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
Curious if one has CLL (a very low count) are they recommending using
A friend has CLL and is taking the weight loss shot, tirzepatide. Is this recommended and if not, why? She has very low abnormal white...
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
I have CLL , CML and now diagnosed with Multiple Myeloma: Discouraged
I have CLL , CML, and last night I was just diagnosed with multiple myeloma how many forms of cancer can one person have? I...
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
https://connect.mayoclinic.org/discussion/does-cll-cause-minor-daily-fevers-of-maybe-1-or-2-degrees/
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Chronic Lymphocytic Leukemia: Anyone else in remission?
I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in...
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Anyone else diagnosed with 'aCLL' - rare variation?
I was diagnosed with CLL in 2021 and put on 'watch and wait'. A swollen lymph node biopsy this year led to a finding of...
Heard of HealthTree Cure Hub?
I just had an hour-long online walk thru of the HealthTree Cure Hub website (https://healthtree.org/curehub). I was wondering if anyone is a member here. This...
Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...
Latest blood draw
I just received the results of my latest blood draw and am curious if anyone here who has had CLL had their diagnosis change to...
How to handle Extreme Tiredness?
I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
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