Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
982 total results
Discussions (90)
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Last active: Aug 9, 2023
Curious if one has CLL (a very low count) are they recommending using
A friend has CLL and is taking the weight loss shot, tirzepatide. Is this recommended and if not, why? She has very low abnormal white...
Last active: Sep 9, 2025
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
Last active: Apr 15, 2023
I have CLL , CML and now diagnosed with Multiple Myeloma: Discouraged
I have CLL , CML, and last night I was just diagnosed with multiple myeloma how many forms of cancer can one person have? I...
Last active: Jun 6, 2025
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Last active: Oct 19, 2024
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
Last active: Jun 27, 2024
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Last active: Mar 14, 2025
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
Last active: Nov 16, 2022
CLL Treatment side effects are wearing me down: Anything I can do?
I am a 78 year old male living in Southern California. I was diagnosed with CLL in Jan 2022 and told to wait and watch....
Last active: Feb 16 8:34am
Need min. invasive lumbar stenois have CLL stage 0 what's risk?
Was going in for Min evasive surgery for lumbar spinal stenois found high white blood cell found haveCLL wait and worry stage am worried about...
Last active: Aug 18, 2024
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Last active: Mar 11, 2025
Chronic Lymphocytic Leukemia: Anyone else in remission?
I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in...
Last active: Dec 14, 2025
Sudden weight loss and decrease in appetite
My Mom was diagnosed with CLL last January. Late January of this year she went to her doctor because she was weak and was losing...
Last active: Mar 20 12:06pm
Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...
Last active: Mar 13 9:25am
Heard of HealthTree Cure Hub?
I just had an hour-long online walk thru of the HealthTree Cure Hub website (https://healthtree.org/curehub). I was wondering if anyone is a member here. This...
Last active: Jul 19, 2025
Anyone else diagnosed with 'aCLL' - rare variation?
I was diagnosed with CLL in 2021 and put on 'watch and wait'. A swollen lymph node biopsy this year led to a finding of...
Last active: Sep 28, 2025
Latest blood draw
I just received the results of my latest blood draw and am curious if anyone here who has had CLL had their diagnosis change to...
Last active: Jun 3, 2025
How to handle Extreme Tiredness?
I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....
Last active: May 4, 2023
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Last active: Apr 19, 2025
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Last active: Aug 13, 2023