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Discussions (98)
Curious if one has CLL (a very low count) are they recommending using
A friend has CLL and is taking the weight loss shot, tirzepatide. Is this recommended and if not, why? She has very low abnormal white...
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
CLL and Abnormal FISH results: Need some insight & encouragement
CLL with deletion of 17p (TP53) is associated with unfavorableprognosisI just read a newly posted test result on my MYCHART.I have been being told since...
With CLL what to do about night sweats and dry mouth?
I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
CLL: Have you had chemo, ummunotherapy or other treatment?
My doctor discovered smudge cells as a pre-cursor to CLL in Dec. 2015. This spring of 2016, my lyphmocyte count put over the 5000 threshold...
Anybody had blood transfusion after taking Brukinsa for CLL?
My husband was on Brukinsa for two month, his WBC went down from 201 to 54 but his HGB went down from 13 to 7...
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
To Stop Getting Sick Consider Adding Immunology to your CLL Team
I am being treated by a great CLL team at Mayo for going on 2 yrs now. What I recently learned after having 3+ sinus...
I have CLL , CML and now diagnosed with Multiple Myeloma: Discouraged
I have CLL , CML, and last night I was just diagnosed with multiple myeloma how many forms of cancer can one person have? I...
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
https://connect.mayoclinic.org/discussion/does-cll-cause-minor-daily-fevers-of-maybe-1-or-2-degrees/
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
CLL Treatment side effects are wearing me down: Anything I can do?
I am a 78 year old male living in Southern California. I was diagnosed with CLL in Jan 2022 and told to wait and watch....
Need min. invasive lumbar stenois have CLL stage 0 what's risk?
Was going in for Min evasive surgery for lumbar spinal stenois found high white blood cell found haveCLL wait and worry stage am worried about...
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Chronic Lymphocytic Leukemia: Anyone else in remission?
I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in...
Timing of Calquence and Venclexta
Hi All! I was diagnosed with CLL/SLL in 2022 and started the watch and wait process. Since then, I've had a successful esophagectomy for esophageal...
Heard of HealthTree Cure Hub?
I just had an hour-long online walk thru of the HealthTree Cure Hub website (https://healthtree.org/curehub). I was wondering if anyone is a member here. This...
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