Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
706 total results
Discussions (72)
How to handle Extreme Tiredness?
I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....
Last active: May 4, 2023
Diagnosed with small lymphocytic lymphoma (SLL)
I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...
Last active: Dec 11, 2023
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Last active: Jul 13, 2023
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Last active: Aug 13, 2023
Finding the right cancer care team
Hello,I will be going to my 2nd visit with the hematologist/oncologist I was referred to by my PCP. My question is how did other people...
Last active: Mar 6, 2024
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
Last active: 5 days ago
Hairy Cell Leukemia: What were your symptoms before treatment?
Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...
Last active: Mar 12, 2024
Haptoglobin RBC major issues
My rbc labs getting worse. Haptoglobin is now 2.7 when low is 65!!!! I have felt I'm highly anemic. Docs don't see it. I have...
Last active: Sep 11, 2023
Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter
Hello - My daughter was just diagnosed with Crhonic NK Cell Leukemia. She was a healthy athlete so the news came as a shock for...
Last active: Feb 14, 2020
Iron Tablets! And learning about fatigue and to pace myself
Hello Lori and all of you, sorry to have been gone so long, lost my password and finally gave up looking for it. I have...
Last active: Jul 27, 2023
Coping with long term cancers
I guess on one level, having to cope with long term cancer is better than the alternative. :-) However, my wife was diagnosed with CLL...
Last active: Mar 11, 2019