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Blood Cancers & Disorders Support Group

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Discussions (81)
Recurring severe mouth ulcers and MGUS
Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...
Last active: Sep 25 4:10pm
Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...
Last active: Sep 19 12:31pm
Resources for MGUS: What reading is helpful for the newly diagnosed?
I am recently diagnosed. Could you tell me what resources or reading might be helpful. Also, has anyone heard that coffee is not good for...
Last active: Sep 22 4:37am
Mildly Hypocellular bone marrow (40% cellularity) with MGUS
Hello all. I am 24 years old, male. I was diagnosed with MGUS in December 2021. Since then, My M protein has gone from 0.3...
Last active: Aug 19, 2023
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...
Last active: Oct 16, 2023
MGUS Symptoms: What symptoms did you experience?
I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...
Last active: May 15 3:30pm
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Last active: Mar 28 3:24pm
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Jun 1 1:42pm
Looking for advice: Could this be MGUS, because of low m-spike?
Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...
Last active: Aug 12, 2023
MGUS I need help understanding my lab report.
I've had MGUS for about 10 years, give or take. Next year, I'll be 80. Since I've been dealing with other issues: coronary artery disease...
Last active: Jan 20 9:58am
Does plant-based eating lower chances of MGUS progressing to myeloma?
Hi. I was diagnosed with MGUS. I heard that diet, especially a plant based diet can slow the progression of MGUS. Has anyone changed their...
Last active: 6 days ago
Does anyone know of bruising as a progressing symptom of mgus to MM?
I am 42, diagnosed with Mgus IgA 2 years ago. My numbers are just below shouldering myeloma and now being followed every 6 months at...
Last active: Aug 20 3:36pm
MGUS and Myasthenia Gravis - does anyone have both?
Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...
Last active: May 16 6:00pm
MGUS: Please, let me know I not alone
i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...
Last active: Jun 3, 2023
Does anyone have any info on MGUS treatment or risk of progression?
Hi all, I'm Nick, I'm 37 from the UK. I've just been diagnosed with MGUS. My M-spike is 1.3g d/l and everything else is normal....
Last active: Nov 13, 2023
Anyone been denied life insurance based on your MGUS dx?
My life insurance is about to time out. I’d like to get a policy to help tidy up things if I die the next 10...
Last active: Jun 23, 2023
Anyone else been diagnosed with CVID and MGUS and have multiple cancer
I had squamous cell carcinoma of the cervix and had surgery that removed everything except my right ovary. Then had Igg. After remission though I...
Last active: Feb 15 2:41pm
Does MGUS cause red blood cells (RBCs) to drop?
I was diagnosed in June with Mgus. I am so fatigued and weak. RBCs dropped to below normal. Dr. blows me off-“eat red meat and...
Last active: Oct 16 5:56pm
MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?
Is there anyone who was diagnosed with MGUS, SMM or MM who also experienced chronic diarrhea or other GI issues before treatment as one of...
Last active: Mar 21 7:57am