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Blood Cancers & Disorders Support Group

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Discussions (110)
Effect of caffeine and alcohol on progression of MGUS
I am newly diagnosed. I don’t drink alcohol and caffeine but do indulge on occasion. Has anyone heard how this might affect MGUS? Thanks!
Last active: Nov 12, 2024
Any connection between MGUS and arthritis?
I've just been diagnosed with MGUS, and the pain from my osteoarthritis in my left knee has been getting worse. I'm fairly sure these are...
Last active: Mar 14 10:57am
People diagnosed with MGUS under 45
I was diagnosed with MGUS and iron deficient anemia at 36. I am not diabetic or prediabetic and have no autoimmune or other serious underlining...
Last active: Jun 9 6:06pm
Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...
Last active: Jul 21 2:08pm
Question to ask about MGUS Diagnosis
Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in...
Last active: Jul 27 7:33pm
Best Medicare Insurance for MGUS and Multiple Myeloma?
As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...
Last active: Nov 29, 2023
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Last active: Aug 20 6:18pm
Does anyone have neuropathy related to MGUS?
I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...
Last active: May 14, 2024
Anyone have MGUS and being treated for osteoporosis?
Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks
Last active: Jun 20, 2024
Could we talk about anxiety with MGUS
Hi Group, I am having a lot of anxiety about my MGUS progressing. Does anyone else deal with this on a regular basis? Could you...
Last active: Mar 3 1:00am
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Last active: Apr 7, 2023
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Jun 26 2:36pm
Mildly Hypocellular bone marrow (40% cellularity) with MGUS
Hello all. I am 24 years old, male. I was diagnosed with MGUS in December 2021. Since then, My M protein has gone from 0.3...
Last active: Aug 19, 2023
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...
Last active: Oct 16, 2023
MGUS Symptoms: What symptoms did you experience?
I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...
Last active: May 15, 2024
Anybody diagnosed with MGUS in their 20s, 30s, 40s?
Anybody diagnosed with MGUS in their 20s, 30s or 40s, and has had it for more than 10-15 yrs? Has your lab results improved or...
Last active: Jul 28 9:09pm
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Last active: Aug 21 1:06pm
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Last active: Mar 28, 2024
Resources for MGUS: What reading is helpful for the newly diagnosed?
I am recently diagnosed. Could you tell me what resources or reading might be helpful. Also, has anyone heard that coffee is not good for...
Last active: Sep 22, 2024
Should I Be Concerned? Blood test suggestive of MGUS
A year ago, I was sent to a nephrologist for hematuria, creatinine clearance by Cockcroft-Gault of 52, creatinine 1.24. He did some blood test that...
Last active: Jun 2 10:39am