Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
1,881 total results
Discussions (93)
I am newly Diagnosed with MGUS.
I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or...
Last active: Feb 6, 2024
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
Last active: Jul 2, 2024
MGUS associated with Type I Cryoglobulinemia
I would like to know if there is anyone out there who can give me information on Cryo. I would be very interested in talking...
Last active: Jul 28, 2024
Recurring severe mouth ulcers and MGUS
Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...
Last active: Sep 25, 2024
Effect of caffeine and alcohol on progression of MGUS
I am newly diagnosed. I don’t drink alcohol and caffeine but do indulge on occasion. Has anyone heard how this might affect MGUS? Thanks!
Last active: Nov 12, 2024
Anyone have MGUS and being treated for osteoporosis?
Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks
Last active: Jun 20, 2024
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Last active: Jan 28 8:24pm
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Last active: Apr 7, 2023
Mildly Hypocellular bone marrow (40% cellularity) with MGUS
Hello all. I am 24 years old, male. I was diagnosed with MGUS in December 2021. Since then, My M protein has gone from 0.3...
Last active: Aug 19, 2023
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...
Last active: Oct 16, 2023
MGUS Symptoms: What symptoms did you experience?
I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...
Last active: May 15, 2024
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Apr 2 4:06pm
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Last active: Mar 28, 2024
Resources for MGUS: What reading is helpful for the newly diagnosed?
I am recently diagnosed. Could you tell me what resources or reading might be helpful. Also, has anyone heard that coffee is not good for...
Last active: Sep 22, 2024
MGUS I need help understanding my lab report.
I've had MGUS for about 10 years, give or take. Next year, I'll be 80. Since I've been dealing with other issues: coronary artery disease...
Last active: Jan 20, 2024
Looking for advice: Could this be MGUS, because of low m-spike?
Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...
Last active: Aug 12, 2023
How can I support my immune system with MGUS?
How can I support my immunity with mgus? Is there any treatments to support my immunity or what can I do myself? I'll get all...
Last active: Feb 26 9:34am
Does anyone know of bruising as a progressing symptom of mgus to MM?
I am 42, diagnosed with Mgus IgA 2 years ago. My numbers are just below shouldering myeloma and now being followed every 6 months at...
Last active: Aug 20, 2024
MGUS and Myasthenia Gravis - does anyone have both?
Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...
Last active: Dec 18, 2024