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Discussions (129)
Best Medicare Insurance for MGUS and Multiple Myeloma?
As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...
Last active: Nov 29, 2023
Newly diagnosed with MGUS and so anxious
I am in the first few days of finding out I have MGUS obviously I have googled it and feel very anxious as I have...
Last active: Mar 13, 2025
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Last active: Nov 23, 2025
Anyone else have Symptomatic MGUS?
Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...
Last active: Nov 28, 2023
Does MGUS ever go away?
Two years ago I had a fractured hip and replacement. That is when my blood work went off. The M spike was there and other...
Last active: Jan 11 5:32pm
People diagnosed with MGUS under 45
I was diagnosed with MGUS and iron deficient anemia at 36. I am not diabetic or prediabetic and have no autoimmune or other serious underlining...
Last active: Feb 20 7:13pm
Any connection between MGUS and arthritis?
I've just been diagnosed with MGUS, and the pain from my osteoarthritis in my left knee has been getting worse. I'm fairly sure these are...
Last active: Mar 14, 2025
Effect of caffeine and alcohol on progression of MGUS
I am newly diagnosed. I don’t drink alcohol and caffeine but do indulge on occasion. Has anyone heard how this might affect MGUS? Thanks!
Last active: Nov 12, 2024
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
Last active: Jul 2, 2024
Recurring severe mouth ulcers and MGUS
Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...
Last active: Feb 15 5:29pm
I am newly Diagnosed with MGUS.
I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or...
Last active: Feb 6, 2024
Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...
Last active: Mar 3 5:40pm
Question to ask about MGUS Diagnosis
Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in...
Last active: Jul 27, 2025
MGUS associated with Type I Cryoglobulinemia
I would like to know if there is anyone out there who can give me information on Cryo. I would be very interested in talking...
Last active: Jul 28, 2024
Resources for MGUS: What reading is helpful for the newly diagnosed?
I am recently diagnosed. Could you tell me what resources or reading might be helpful. Also, has anyone heard that coffee is not good for...
Last active: Sep 22, 2024
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Last active: Mar 28, 2024
MGUS Symptoms: What symptoms did you experience?
I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...
Last active: Oct 31, 2025
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...
Last active: Oct 16, 2023
Mildly Hypocellular bone marrow (40% cellularity) with MGUS
Hello all. I am 24 years old, male. I was diagnosed with MGUS in December 2021. Since then, My M protein has gone from 0.3...
Last active: Aug 19, 2023