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Discussions (98)
Test Results and Prone to CLL based on DNA test
Since 2019 my monocytes have been high 10% on every test from 2019-now On top of that my immature granule gets arr 0.6% which is...
Last active: Jul 23, 2023
Chronic lymphocytic leukemia (CLL): How does it behave?
Seventy-eight year old female here. Diagnosed with bladder cancer in early 2025 and had my bladder removed that March. A CT scan during my workup...
Last active: Apr 25 3:04pm
What is the prognosis of living with CLL beyond 20 years?
Most articles about CLL state the vast majority of CLL patients have survived 20 years but there doesn't seem to be any mention beyond 20...
Last active: Jun 5, 2024
CLL - Blood work Completed IGVA Mutation Analysis
Hi all it is me again. My husbands full blood panel came back and his IGVH Mutation Analysis came back positive. Everything I try to...
Last active: Feb 21, 2024
Dual Diagnosis of CLL and Acute Epstein Barr Virus
I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help,...
Last active: Oct 22, 2021
Anybody on treatment for CLL: What kind and what side effects?
Is there anybody who is on treatment of CLL , what kind it is and what are side effects?
Last active: Dec 7, 2025
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
CLL patients needing other non related surgeries or procedures
I want to know if it endangers a CLL patient to have other surgeries and medical procedures unrelated to CLL?
Last active: Feb 3, 2023
CLL Watch and Wait: Can supplements and diet help?
I have been reading studies and have spoken with a Vitamin K expert about vitamin supplements. I am wondering if anyone has taken Lysine, vitamin...
Last active: Jun 8, 2025
CLL: Has anyone experienced symptoms at Stage 0?
Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...
Last active: May 6, 2024
Concerned: CLL in remission, but feel lousy, what to do?
I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...
Last active: Jan 25, 2023
Diagnosed with CLL and ITP together! What can I expect?
I was a an active 60 year old man, when routine blood work showed low platelets.... from there, bone marrow biopsy, scans... DVT both legs,...
Last active: Mar 16, 2023
CLL treatment that concentrates in shrinking the spleen without undergoing chemo
I have had CLL for 12 years, without need for treatment. Now my spleen has double in size from normal and I would like to...
Last active: Mar 5, 2023
Is possible to know how long ago I got CLL?
I am newly diagnosed with CLL. I am wondering if it is possible to get an idea of how long I have had this. I...
Last active: Jun 26, 2024
Had CLL since 1996 & Now NETs-Anyone Else?
I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...
Last active: Aug 27, 2023
Using pulsating electro-magnetic fields as an adjunct in treating CLL
I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...
Last active: Dec 18, 2018
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
Last active: Jan 21, 2024
Newly Diagnosed CLL Patients: Do you struggle with symptoms?
Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...
Last active: Feb 3, 2023
WBC bottomed after first chemo for CLL: Postpone treatment?
Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...
Last active: Sep 27, 2020