Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
706 total results
Discussions (72)
Concerned: CLL in remission, but feel lousy, what to do?
I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...
Last active: Jan 25, 2023
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Last active: Aug 9, 2023
Using pulsating electro-magnetic fields as an adjunct in treating CLL
I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...
Last active: Dec 18, 2018
Had CLL since 1996 & Now NETs-Anyone Else?
I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...
Last active: Aug 27, 2023
Is possible to know how long ago I got CLL?
I am newly diagnosed with CLL. I am wondering if it is possible to get an idea of how long I have had this. I...
Last active: Jun 26, 2024
CLL patients needing other non related surgeries or procedures
I want to know if it endangers a CLL patient to have other surgeries and medical procedures unrelated to CLL?
Last active: Feb 3, 2023
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
WBC bottomed after first chemo for CLL: Postpone treatment?
Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...
Last active: Sep 27, 2020
Newly Diagnosed CLL Patients: Do you struggle with symptoms?
Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...
Last active: Feb 3, 2023
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
Last active: Jan 21, 2024
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
Last active: Jan 1, 2024
With CLL what to do about night sweats and dry mouth?
I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks
Last active: Jul 1, 2024
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
Last active: Apr 15, 2023
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Last active: Oct 19, 2024
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
Last active: Nov 16, 2022
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Last active: Mar 23, 2024
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
Last active: Jun 27, 2024
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Last active: Aug 12, 2024
Chronic Lymphocytic Leukemia: Anyone else in remission?
I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in...
Last active: Jun 15, 2024
Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...
Last active: May 19, 2024