645 total results
Discussions (64)
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
WBC bottomed after first chemo for CLL: Postpone treatment?
Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...
Newly Diagnosed CLL Patients: Do you struggle with symptoms?
Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
https://connect.mayoclinic.org/discussion/does-cll-cause-minor-daily-fevers-of-maybe-1-or-2-degrees/
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Chronic Lymphocytic Leukemia: Anyone else in remission?
I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in...
Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...
How to handle Extreme Tiredness?
I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Diagnosed with small lymphocytic lymphoma (SLL)
I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...
Finding the right cancer care team
Hello,I will be going to my 2nd visit with the hematologist/oncologist I was referred to by my PCP. My question is how did other people...
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Why hair falling out and nails breaking before diagnosis?
I was recently diagnosed with CLL. I haven't had any treatment yet. However, in the last year or so, my hair has been thinning out...
Hairy Cell Leukemia: What were your symptoms before treatment?
Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...