Blood Cancers & Disorders Support Group

I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help,...

Has anybody heard of using Red Light Therapy in CLL?

I was a an active 60 year old man, when routine blood work showed low platelets.... from there, bone marrow biopsy, scans... DVT both legs,...

I have had CLL for 12 years, without need for treatment. Now my spleen has double in size from normal and I would like to...

I have been reading studies and have spoken with a Vitamin K expert about vitamin supplements. I am wondering if anyone has taken Lysine, vitamin...

Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...

I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...

Is there anybody who is on treatment of CLL , what kind it is and what are side effects?

I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...

I want to know if it endangers a CLL patient to have other surgeries and medical procedures unrelated to CLL?

I am newly diagnosed with CLL. I am wondering if it is possible to get an idea of how long I have had this. I...

I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...

I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...

I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.

Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...

Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...

I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...

CLL with deletion of 17p (TP53) is associated with unfavorableprognosisI just read a newly posted test result on my MYCHART.I have been being told since...

I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks

At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...