Blood Cancers & Disorders Support Group

I have had CLL for 14 years. Had an outbreak of Pyoderma Gangrenosum in 2017-18 . It was very difficult to treat using every tool...

I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help,...

Hi, My name is Mary and I am 59 years old, I was diagnosed with Chronic lymphocytic Leukemia nine years ago. since then I have...

Hi all it is me again. My husbands full blood panel came back and his IGVH Mutation Analysis came back positive. Everything I try to...

Most articles about CLL state the vast majority of CLL patients have survived 20 years but there doesn't seem to be any mention beyond 20...

I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...

I have been reading studies and have spoken with a Vitamin K expert about vitamin supplements. I am wondering if anyone has taken Lysine, vitamin...

Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...

I was a an active 60 year old man, when routine blood work showed low platelets.... from there, bone marrow biopsy, scans... DVT both legs,...

I have had CLL for 12 years, without need for treatment. Now my spleen has double in size from normal and I would like to...

I want to know if it endangers a CLL patient to have other surgeries and medical procedures unrelated to CLL?

I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...

I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...

I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...

I am newly diagnosed with CLL. I am wondering if it is possible to get an idea of how long I have had this. I...

Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...

Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...

Has anybody heard of using Red Light Therapy in CLL?

I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.

At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...