996 total results
Discussions (94)
Multiple myeloma: When to treat? When not to treat?
i got the diagnosis in december.doctor says that i do not need any tretment.that the only thing to do now is to monitor and wait.my...
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Multiple Myeloma: Could fatigue and breathlessness be ME/CFS?
Has any MM patient been told their fatigue and breathlessness is caused by ME/CFS? If so, how is it being treated
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...
Does smoldering multiple myeloma or myeloma cause skin problems?
Does smoldering multiple myeloma or myeloma cause skin problems
New Standard-of-Care Emerges for Multiple Myeloma [Article]
NEW STANDARD OF CARE FROM UMIAMI RESEARCHhttps://news.med.miami.edu/new-standard-of-care-emerges-for-multiple-myeloma/
Multiple Myeloma: why do light chain fluctuate?
I have multiple myeloma and had excellent response to 4 months of lenolidamide/bortezomib/dexamethasone/isatuximab. My kappa light chain numbers at diagnosis in May 2024 were about...
Safe to see a Chiropractor for back pain with Multiple Myeloma?
I have chronic low back pain, I wanted to know if a Chiropractor could help and would it be safe to see with Multiple Myeloma?...
How to stop or prevent frequent nosebleeds with Multiple Myeloma?
How can they stop or prevent frequent nosebleeds with Multiple Myeloma other than cauterizing.
BMT for multiple myeloma and have questions about Caregiver
A bone marrow transplant is on my horizon. I have been diagnosedwith Multiple Myeloma (light chain) in June 2022. I live in northern Minnesota. I...
Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...
Multiple Myeloma: Come introduce yourself and let's talk
I was diagnosed after a bone marrow biopsy as having indolent myeloma 4 years ago. My oncologist says I now have multiple myeloma. I have...
Do you exercise daily while in multiple myeloma treatment?
What are your experiences in going to the gym while doing quad therapy for multiple myeloma?
Anyone have experience with CAR-T therapy for multiple myeloma?
I was diagnosed with MM in July 2022 at age 53. Did induction on RVD followed by autologous transplant in Dec 2022. Never achieved MRD...
Asked chatGPT about how long to be on treatment for Multiple Myeloma
My spouse has been on Darzalex Faspro + Kyprolis + dex for her Multiple Myeloma after she was taken off Vecade and had a bad...
Are any of you Multiple Myeloma patients post kidney transplant?
I am trying to determine how actively I should be pursuing a kidney transplant. I am one year post ASCT and in a complete remission....
Facial flushing and shaky hands after treatment for multiple myeloma
My husband just finished treatment 6 for MM. i sometimes notice facial flushing or shaky hands. Can anyone offer me any insight. Facial flushing before...
Does Anyone Know When Multiple Myeloma Was First Diagnosed
I could probably spend time researching this if I had the time to do it, but I don't. One of my best friends mother died...
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
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