Blood Cancers & Disorders Support Group

My 66 year old sister was diagnosed with Multiple Myaloma in January 2020. She is now in hospice. Doctors say her blood levels do not...

Hello, I’m really desperate suffering with chronic pain, autoimmune disease, diseases, fibromyalgia, chronic fatigue, and 25 other medical conditions, but the restless legs is just...

i got the diagnosis in december.doctor says that i do not need any tretment.that the only thing to do now is to monitor and wait.my...

Is anyone using Darzalex as a stand alone maintenance treatment for Multiple Myeloma? I have been MRD negative for a 18 months and wanted to...

Has any MM patient been told their fatigue and breathlessness is caused by ME/CFS? If so, how is it being treated

What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?

Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...

Recent literature is suggesting there may be a beneficial side effect for some SMM patients who also take GLP-1 drugs for obesity or diabetes.Anyone have...

Does smoldering multiple myeloma or myeloma cause skin problems

NEW STANDARD OF CARE FROM UMIAMI RESEARCHhttps://news.med.miami.edu/new-standard-of-care-emerges-for-multiple-myeloma/

I have multiple myeloma and had excellent response to 4 months of lenolidamide/bortezomib/dexamethasone/isatuximab. My kappa light chain numbers at diagnosis in May 2024 were about...

I have chronic low back pain, I wanted to know if a Chiropractor could help and would it be safe to see with Multiple Myeloma?...

How can they stop or prevent frequent nosebleeds with Multiple Myeloma other than cauterizing.

A bone marrow transplant is on my horizon. I have been diagnosedwith Multiple Myeloma (light chain) in June 2022. I live in northern Minnesota. I...

Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...

I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...

I was diagnosed after a bone marrow biopsy as having indolent myeloma 4 years ago. My oncologist says I now have multiple myeloma. I have...

My spouse has been on Darzalex Faspro + Kyprolis + dex for her Multiple Myeloma after she was taken off Vecade and had a bad...

I was diagnosed with MM in July 2022 at age 53. Did induction on RVD followed by autologous transplant in Dec 2022. Never achieved MRD...

I am trying to determine how actively I should be pursuing a kidney transplant. I am one year post ASCT and in a complete remission....