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Discussions (94)
Multiple myeloma: When to treat? When not to treat?
i got the diagnosis in december.doctor says that i do not need any tretment.that the only thing to do now is to monitor and wait.my...
Last active: Jan 21, 2024
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: 5 days ago
Multiple Myeloma: Could fatigue and breathlessness be ME/CFS?
Has any MM patient been told their fatigue and breathlessness is caused by ME/CFS? If so, how is it being treated
Last active: Dec 27, 2024
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Last active: Feb 5 11:30am
Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...
Last active: Aug 12, 2024
How to stop or prevent frequent nosebleeds with Multiple Myeloma?
How can they stop or prevent frequent nosebleeds with Multiple Myeloma other than cauterizing.
Last active: Nov 24, 2024
BMT for multiple myeloma and have questions about Caregiver
A bone marrow transplant is on my horizon. I have been diagnosedwith Multiple Myeloma (light chain) in June 2022. I live in northern Minnesota. I...
Last active: Oct 18, 2022
New Standard-of-Care Emerges for Multiple Myeloma [Article]
NEW STANDARD OF CARE FROM UMIAMI RESEARCHhttps://news.med.miami.edu/new-standard-of-care-emerges-for-multiple-myeloma/
Last active: Jun 5, 2025
Multiple Myeloma: why do light chain fluctuate?
I have multiple myeloma and had excellent response to 4 months of lenolidamide/bortezomib/dexamethasone/isatuximab. My kappa light chain numbers at diagnosis in May 2024 were about...
Last active: Jan 6, 2025
Safe to see a Chiropractor for back pain with Multiple Myeloma?
I have chronic low back pain, I wanted to know if a Chiropractor could help and would it be safe to see with Multiple Myeloma?...
Last active: Jun 8, 2024
Do you exercise daily while in multiple myeloma treatment?
What are your experiences in going to the gym while doing quad therapy for multiple myeloma?
Last active: 6 days ago
Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...
Last active: Mar 3 11:37pm
Multiple Myeloma: Come introduce yourself and let's talk
I was diagnosed after a bone marrow biopsy as having indolent myeloma 4 years ago. My oncologist says I now have multiple myeloma. I have...
Last active: Feb 13, 2024
Anyone have experience with CAR-T therapy for multiple myeloma?
I was diagnosed with MM in July 2022 at age 53. Did induction on RVD followed by autologous transplant in Dec 2022. Never achieved MRD...
Last active: Apr 17 5:24pm
Asked chatGPT about how long to be on treatment for Multiple Myeloma
My spouse has been on Darzalex Faspro + Kyprolis + dex for her Multiple Myeloma after she was taken off Vecade and had a bad...
Last active: Nov 8, 2025
Are any of you Multiple Myeloma patients post kidney transplant?
I am trying to determine how actively I should be pursuing a kidney transplant. I am one year post ASCT and in a complete remission....
Support Group: Transplants
Last active: Nov 14, 2025
Facial flushing and shaky hands after treatment for multiple myeloma
My husband just finished treatment 6 for MM. i sometimes notice facial flushing or shaky hands. Can anyone offer me any insight. Facial flushing before...
Last active: Sep 3, 2022
Has anyone been diagnosed with both AML and Multiple Myeloma?
I am a 79 year old who has been treated with venetoclax and decitabine for 2 years for my AML. I have been in remission...
Last active: Feb 18, 2024
Does Anyone Know When Multiple Myeloma Was First Diagnosed
I could probably spend time researching this if I had the time to do it, but I don't. One of my best friends mother died...
Last active: Jun 27, 2024