Anyone have experience with CAR-T therapy for multiple myeloma?

Posted by claydavis @claydavis, Nov 29 6:13pm

I was diagnosed with MM in July 2022 at age 53. Did induction on RVD followed by autologous transplant in Dec 2022. Never achieved MRD negative, and have been on Darzalex trial for maintenance. Disease has returned over the past 3-4 months and now contemplating bridging therapy in prep for CAR-T. Still working in fairly high stress occupation and trying to figure out what CAR-T looks like while trying to work. Any insights or counsel from the community? With gratitude…..

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Colleen Young, Connect Director | @colleenyoung | Nov 29 7:54pm

Hi @claydavis, I moved you question to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy support group here: https://connect.mayoclinic.org/group/car-t-cell-therapy/

I'm tagging @4health4bonnie @mohusker @jrbris23 @cjj2 @pgollinger @merrle @myelomawarrior who have talked about CAR-T therapy for multiple myeloma and may be able to help answer your questions.

Also see these related discussions:
- Stem cell transplant vs CAR-T: What can I expect with CAR-T?https://connect.mayoclinic.org/discussion/stem-cell-transplant-vs-car-t/
- CAR-T after MM relapse 13 months post-ASCT https://connect.mayoclinic.org/discussion/car-t-after-mm-relapse-13-months-post-asct/
- Starting pre-tests for CAR-T infusion for multiple myeloma https://connect.mayoclinic.org/discussion/car-t-infusion-for-multiple-myeloma/

@claydavis, working during treatment is hard to predict and may depend on what type of work you do. Working a stressful job is hard at the best of times. Are you able to take time off during treatment?

Please sign in or register to post a reply.