Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
246 total results
Discussions (24)
Does Jardiance have serious interactions with Jakafi?
I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...
Last active: Jun 1, 2023
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Last active: Oct 17 7:43pm
Medicines for reducing fibrosis in polycythemia vera patients
I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...
Last active: 2 days ago
Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
Last active: May 9 4:42pm