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Public Support Group 1,123 total results
Discussions (98)
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
New to CLL-no treatment-what to eat?
Receny diagnosed Nov. with CLL. No treatment recommended 92yrs. What can I eat. Saw somewhere said no dairy...Diabetic diet dairy recommended. Not sure what to...
Anyone have experience with applying for disability with CLL?
Hello! I am writing this on behalf of someone else who is in the beginning stage of CLL. Does anyone have experience with applying for...
CLL and slow healing following dental work
I am in w and w with cll and up till now have not experienced problems with immunity. I recently had a tooth extraction which...
Newly diagnosed with chronic lymphocytic leukemia (CLL)
I am in the watch and wait stage and next appointment is in September. I have had 2 sinus infections within a month, night sweats,...
Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?
Started therapy for CLL after 2.5 years of wait and watch with my excellent doctor at Mayo and local haematologist.This was predicted based on prognostic...
Anyone else experiencing these symptoms with CLL diagnosis....?
I was diagnosed with CLL last summer however upon further review of my medical records and CBC results found that my CLL likely goes back...
Metformin and its impact on SLL/CLL treatment?
Is there any information about the drug Medformin and its impact on SLL/CLL treatment?
What are Smudge Cells? Do they indicate CLL?
If I have smudge cells in my blood and do not have high white cells could that be a consideration for CLL?
Can Chronic Lymphocytic Leukemia (CLL) be cured?
HiI was diagnosed with CLL about 2.5 years ago. Initially my white cell count increased but in the last 18 months it has decreased. I...
Anybody on Treatment for CLL? What kind of treatment?
Anybody on treatment for CLL
Newly diagnosed CLL How to interpret FISH results?
I just got back the FISH results and trying to understand what it means. "Results: abnormal." "INTERPRETATION: This analysis showed signal patterns consistent with trisomy...
CLL diagnosis now having soft tissue pain
I was diagnosed in 2019 with CLL, and was asymptomatic until December 2022 when my lymph nodes started to increase in size. Since July 2023...
Is anyone dealing with CLL, Chronic Lymphoma Leukemia?
I've received radiation treatment for tonsil and throat cancer. Now the doctor wants to treat CLL with Brukinsa. Has anyone used Brukinsa? It is very...
Have Bullous Pemphigoid and now diagnosed with CLL
I have Bullous Pemphigoid and have been diagnosed with CLL. I was wondering if that has happened to anyone else.
CLL complicated by autoimmune hemolytic anemia (AIHA)
Anyone dealing with AIHA? I’ve had 4 infusions of rituxan. Got hemoglobin to 12, but other markers of hemolysis still off. What next? Geri
Has anyone with CLL experienced a spike in wbc after Reclast?
I was diagnosed with CLL 9/24/23 at the age of 78. So far no symptoms, and thus no treatment. WBC at diagnosis was 27.2 and...
CLL leukemia: Just diagnosed, what can be done?
Husband 84 just diagnosed with CLL, Is this common in older people and what things are done to stop from progressing?? We are new to...
Does anyone with CLL also have Pyoderma Gangrenosum?
I have had CLL for 14 years. Had an outbreak of Pyoderma Gangrenosum in 2017-18 . It was very difficult to treat using every tool...
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