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Discussions (89)
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
Last active: Aug 18, 2024
CLL and slow healing following dental work
I am in w and w with cll and up till now have not experienced problems with immunity. I recently had a tooth extraction which...
Last active: Aug 11, 2024
Anyone have experience with applying for disability with CLL?
Hello! I am writing this on behalf of someone else who is in the beginning stage of CLL. Does anyone have experience with applying for...
Last active: Jun 1 8:50pm
Any suggestions on how to travel safely with CLL?
Husband diagnosed 3 mos ago with CLL. No treatments at this time, we’re planning a weekend in Vegas to see a couple of shows, we...
Last active: Sep 16, 2022
CLL and high kappa free light chains
I was recently diagnosed and been having a lot symptoms like hot flashes, bone and joint pain and fatigue. WBC are at 26 and lymphocytes...
Last active: Feb 25, 2023
Might have CLL: Does it come on fast?
6 months ago my rheumatologist did some blood work and everything was normal. Now, this month with different dr, my blood test showed elevated white...
Last active: Jul 9, 2024
What are Smudge Cells? Do they indicate CLL?
If I have smudge cells in my blood and do not have high white cells could that be a consideration for CLL?
Last active: May 12, 2023
Metformin and its impact on SLL/CLL treatment?
Is there any information about the drug Medformin and its impact on SLL/CLL treatment?
Last active: Jun 15, 2024
Anyone else experiencing these symptoms with CLL diagnosis....?
I was diagnosed with CLL last summer however upon further review of my medical records and CBC results found that my CLL likely goes back...
Last active: Jun 10 12:23pm
Anybody on treatment for CLL: What kind and what side effects?
Is there anybody who is on treatment of CLL , what kind it is and what are side effects?
Last active: Dec 7 4:40pm
CLL complicated by autoimmune hemolytic anemia (AIHA)
Anyone dealing with AIHA? I’ve had 4 infusions of rituxan. Got hemoglobin to 12, but other markers of hemolysis still off. What next? Geri
Last active: May 25, 2023
Have Bullous Pemphigoid and now diagnosed with CLL
I have Bullous Pemphigoid and have been diagnosed with CLL. I was wondering if that has happened to anyone else.
Support Group: Autoimmune Diseases
Last active: Jun 7, 2024
CLL leukemia: Just diagnosed, what can be done?
Husband 84 just diagnosed with CLL, Is this common in older people and what things are done to stop from progressing?? We are new to...
Last active: Jul 20, 2024
CLL diagnosis now having soft tissue pain
I was diagnosed in 2019 with CLL, and was asymptomatic until December 2022 when my lymph nodes started to increase in size. Since July 2023...
Last active: Nov 22, 2023
Newly diagnosed CLL How to interpret FISH results?
I just got back the FISH results and trying to understand what it means. "Results: abnormal." "INTERPRETATION: This analysis showed signal patterns consistent with trisomy...
Last active: Jan 9 8:43am
CLL and Abnormal FISH results: Need some insight & encouragement
CLL with deletion of 17p (TP53) is associated with unfavorableprognosisI just read a newly posted test result on my MYCHART.I have been being told since...
Last active: 4 days ago
Test Results and Prone to CLL based on DNA test
Since 2019 my monocytes have been high 10% on every test from 2019-now On top of that my immature granule gets arr 0.6% which is...
Last active: Jul 23, 2023