Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
706 total results
Discussions (72)
What are Smudge Cells? Do they indicate CLL?
If I have smudge cells in my blood and do not have high white cells could that be a consideration for CLL?
Last active: May 12, 2023
Metformin and its impact on SLL/CLL treatment?
Is there any information about the drug Medformin and its impact on SLL/CLL treatment?
Last active: Jun 15, 2024
CLL leukemia: Just diagnosed, what can be done?
Husband 84 just diagnosed with CLL, Is this common in older people and what things are done to stop from progressing?? We are new to...
Last active: Jul 20, 2024
Any suggestions on how to travel safely with CLL?
Husband diagnosed 3 mos ago with CLL. No treatments at this time, we’re planning a weekend in Vegas to see a couple of shows, we...
Last active: Sep 16, 2022
CLL and high kappa free light chains
I was recently diagnosed and been having a lot symptoms like hot flashes, bone and joint pain and fatigue. WBC are at 26 and lymphocytes...
Last active: Feb 25, 2023
Might have CLL: Does it come on fast?
6 months ago my rheumatologist did some blood work and everything was normal. Now, this month with different dr, my blood test showed elevated white...
Last active: Jul 9, 2024
CLL complicated by autoimmune hemolytic anemia (AIHA)
Anyone dealing with AIHA? I’ve had 4 infusions of rituxan. Got hemoglobin to 12, but other markers of hemolysis still off. What next? Geri
Last active: May 25, 2023
Have Bullous Pemphigoid and now diagnosed with CLL
I have Bullous Pemphigoid and have been diagnosed with CLL. I was wondering if that has happened to anyone else.
Support Group: Autoimmune Diseases
Last active: Jun 7, 2024
Test Results and Prone to CLL based on DNA test
Since 2019 my monocytes have been high 10% on every test from 2019-now On top of that my immature granule gets arr 0.6% which is...
Last active: Jul 23, 2023
Does anyone with CLL also have Pyoderma Gangrenosum?
I have had CLL for 14 years. Had an outbreak of Pyoderma Gangrenosum in 2017-18 . It was very difficult to treat using every tool...
Last active: Aug 10, 2024
Newly diagnosed CLL How to interpret FISH results?
I just got back the FISH results and trying to understand what it means. "Results: abnormal." "INTERPRETATION: This analysis showed signal patterns consistent with trisomy...
Last active: 6 hours ago
Diagnosed with CLL and ITP together! What can I expect?
I was a an active 60 year old man, when routine blood work showed low platelets.... from there, bone marrow biopsy, scans... DVT both legs,...
Last active: Mar 16, 2023
CLL treatment that concentrates in shrinking the spleen without undergoing chemo
I have had CLL for 12 years, without need for treatment. Now my spleen has double in size from normal and I would like to...
Last active: Mar 5, 2023
CLL diagnosis now having soft tissue pain
I was diagnosed in 2019 with CLL, and was asymptomatic until December 2022 when my lymph nodes started to increase in size. Since July 2023...
Last active: Nov 22, 2023
Dual Diagnosis of CLL and Acute Epstein Barr Virus
I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help,...
Last active: Oct 22, 2021
CLL: Chemotherapy and its affect on my immune system
Hi, My name is Mary and I am 59 years old, I was diagnosed with Chronic lymphocytic Leukemia nine years ago. since then I have...
Last active: May 29, 2018
CLL - Blood work Completed IGVA Mutation Analysis
Hi all it is me again. My husbands full blood panel came back and his IGVH Mutation Analysis came back positive. Everything I try to...
Last active: Feb 21, 2024
What is the prognosis of living with CLL beyond 20 years?
Most articles about CLL state the vast majority of CLL patients have survived 20 years but there doesn't seem to be any mention beyond 20...
Last active: Jun 5, 2024
CLL Watch and Wait: Can supplements and diet help?
I have been reading studies and have spoken with a Vitamin K expert about vitamin supplements. I am wondering if anyone has taken Lysine, vitamin...
Last active: Nov 20, 2024