Blood Cancers & Disorders Support Group

My husband was diagnosed with MGUS in late 2024 and has lab work done every six months. My concern is the pain he has in...

I was diagnosed with MGUS the Fall of 2023. Recently I am experiencing severe pain in my right knee, left ankle and now my neck/shoulders....

My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...

When one has MGUS and osteoporosis that is causing immense bone pain especially in the joints and large bones, plus tingling and muscle spasms, what...

Anyone has MGUS are you having joint pain?

What to do? Anyone with gum and bone loss and foot actually toe pain? My dentist referred me to periodontist and asked if I have...

Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...

I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...

I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...

Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...

Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I...

i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...

I've just been diagnosed with MGUS, and the pain from my osteoarthritis in my left knee has been getting worse. I'm fairly sure these are...

I am 42, diagnosed with Mgus IgA 2 years ago. My numbers are just below shouldering myeloma and now being followed every 6 months at...

Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...

I've had MGUS for about 10 years, give or take. Next year, I'll be 80. Since I've been dealing with other issues: coronary artery disease...

Hey I have been sick for quite sometime having bone pain and low iron levels and I had bleeding in my stomach previously they said...

I am in the first few days of finding out I have MGUS obviously I have googled it and feel very anxious as I have...

Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...

Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...