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Public Support Group 902 total results
Discussions (64)
MDS and Neupogen
After an introductory stay in hospital about a year ago I have self injected expensive stuff, neupogen. One jab a week most of the time....
MDS and cognitive decline
Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?
Diagnosing MDS
As some of you may remember, this journey started for me "formally" (meaning it was caught then, but I had low platelets for at least...
MDS and thyroidectomy
I have MDS iso del 5q. Currently I'm just being monitored, with a slow decline in haemaglobin (currently 90). I also have a benign multinodular...
Neuroendocrine insulinoma and MDS
my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...
UCARE coverage and MDS
We're looking for coverage for my husband. He has MDS MPN. We heard UCARE is good and covers well. Anyone have experience? We're in MN....
IPSS Scores for MDS
Hi I am wondering if anyone can help me determine my IPSS score for MDS. I have a copy of my Bone Marrow Biopsy test...
Living with MDS (Myelodyplastic Syndromes)
I finally got my answer to what I have and trying to wrap my mind around it.I am an ovarian cancer survivor of 20 years...
imetelstat/Rytelo MDS treatment anyone?
My husband has MDS & has been on luspatercept for almost 3 yrs. He is now transfusion dependent. His doc is going to start treatment...
Mantle Cell Lymphoma and MDS (RARS)
Has anyone been treated for a combination of these? About 8 years I was diagnosed with MDS ( refractory anemia with ringed sideroblasts). Mantle cell...
MDS with sideroblasts and trying Lospatercept or Elritercept?
Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?
Looking for experiences with the progression of MDS
Good morning ,I am looking for shared experiences with the progression of MDS and or other blood cancer. What are signs and or symptoms to...
Low Platelets with Myelodysplastic Syndrome (MDS)
Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...
MDS in a 75 year old male
First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
What Caused MDS in My Case?
My doctor shies away from answering my questions about the probable cause of MDS in my case. I guess this is pretty normal for most...
Family member newly diagnosed with MDS
Hi everyone, I have a brother newly diagnosed with MDS. He has had low platelets in the 70,000 range for 7+ years and has been...
Anyone dealing MDS and how are you doing?
Hello Anyone dealing with MDS and how long and how are you doing?
Myelodysplastic syndrome (MDS) and skin itching
what can be done for extreme itching from myelodysplasia
Anyone taking retacrit and releuko injections for MDS
My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?
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