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Discussions (87)
MDS and sugar
I've heard for many years that some cancers love sugar. Does MDS feed on sugar we eat?
Last active: 6 days ago
Diagnosing MDS
As some of you may remember, this journey started for me "formally" (meaning it was caught then, but I had low platelets for at least...
Last active: Jun 20, 2025
MDS and thyroidectomy
I have MDS iso del 5q. Currently I'm just being monitored, with a slow decline in haemaglobin (currently 90). I also have a benign multinodular...
Last active: Jul 2, 2023
Anyone dealing with MDS?
I have been anemic for three years and no cause has been indentified. MDS is the only thing that has been mentioned but not diagnosed....
Last active: Mar 28 7:33am
MDS and Neupogen
After an introductory stay in hospital about a year ago I have self injected expensive stuff, neupogen. One jab a week most of the time....
Last active: Mar 1, 2019
MDS and cognitive decline
Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?
Last active: Jan 2, 2025
IPSS Scores for MDS
Hi I am wondering if anyone can help me determine my IPSS score for MDS. I have a copy of my Bone Marrow Biopsy test...
Last active: Jan 7, 2024
Flossing teeth and MDS
Lately when I floss my teeth my gums will get real soar and swell up between my teeth. I don't know if MDS has any...
Last active: Apr 4 9:45am
UCARE coverage and MDS
We're looking for coverage for my husband. He has MDS MPN. We heard UCARE is good and covers well. Anyone have experience? We're in MN....
Last active: Dec 19, 2024
Neuroendocrine insulinoma and MDS
my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...
Last active: Nov 29, 2024
Living with MDS (Myelodyplastic Syndromes)
I finally got my answer to what I have and trying to wrap my mind around it.I am an ovarian cancer survivor of 20 years...
Last active: Nov 8, 2025
I have mds AND Parkinsons
I have Parkinson’s,I had bmt for leukaemia 16. Years agoThe cancer has returned as mdsAnyone else has
Last active: Nov 9, 2025
Looking for experiences with the progression of MDS
Good morning ,I am looking for shared experiences with the progression of MDS and or other blood cancer. What are signs and or symptoms to...
Last active: Nov 30, 2024
imetelstat/Rytelo MDS treatment anyone?
My husband has MDS & has been on luspatercept for almost 3 yrs. He is now transfusion dependent. His doc is going to start treatment...
Last active: Sep 5, 2025
Just noticed this today: MDS and bruising?
I have MDS (myelodysplastic syndromes) and just noticed this on my leg. I don't recall hitting it or bumping it at all. Would this kind...
Last active: 5 hours ago
What Caused MDS in My Case?
My doctor shies away from answering my questions about the probable cause of MDS in my case. I guess this is pretty normal for most...
Last active: May 25, 2025
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
Last active: Nov 19, 2025
Family member newly diagnosed with MDS
Hi everyone, I have a brother newly diagnosed with MDS. He has had low platelets in the 70,000 range for 7+ years and has been...
Last active: Sep 16, 2025
Anyone with MDS and Anemia receiving injections of growth hormone?
Is there anyone who has been diagnosed with MDS with anemia who is taking hormone injections to help the bone marrow produce healthy red blood...
Last active: Mar 31 8:31am