Blood Cancers & Disorders Support Group

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Comments (2,186)

@theadosi Doing fine. Just live your life and don’t attribute any pain to MGUS progression. I...

https://connect.mayoclinic.org/comment/1491266/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 2:50pm

@rimord and @redvrm yes, although there are different classifications of MGUS with different risk stratification. Then...

https://connect.mayoclinic.org/comment/1475906/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 1:23pm

@norac, you might appreciate these MGUS related discussions: - MGUS with bone pain? https://connect.mayoclinic.org/discussion/mgus-with-bone-pain/ See all:...

https://connect.mayoclinic.org/comment/1440617/

Discussion: Does anyone have MGUS (which is a blood disorder) with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

@positivethinking, I combined your discussion with an existing discussion titled: "Does anyone have neuropathy related to...

https://connect.mayoclinic.org/comment/1452737/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Hi, @myboyzr2, Welcome to Mayo Clinic Connect! I’m glad you found this forum too. It really...

https://connect.mayoclinic.org/comment/788025/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

@gingerw Re: your "wondering how things might have been different years ago, for me...." I wouldn't...

https://connect.mayoclinic.org/comment/1493181/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Hi @kk1221, you are a welcome asset to the group, having lived for 30 years and...

https://connect.mayoclinic.org/comment/1197467/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

There are definitely links between MGUS and neuropathy. I have had MGUS for 3 years and...

https://connect.mayoclinic.org/comment/861700/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

I have neuropathic pain in shoulder wrist ankle with MGUS and this week retinal hemorrhage -...

https://connect.mayoclinic.org/comment/1459043/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

Hi @mommatracy5 Welcome to Mayo Clinic Connect. Oh gosh, anytime we get a diagnosis it’s always...

https://connect.mayoclinic.org/comment/733533/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

@marvey, I've moved your post into the MGUS discussion which you can now find here: -...

https://connect.mayoclinic.org/comment/889242/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2023

Hi @nick86, there are many discussion about MGUS that you may also wish to explore. In...

https://connect.mayoclinic.org/comment/938923/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2023

@hsminc Website describing the Sloan study: https://www.mskcc.org/news/diets-for-mgus-smoldering-myeloma-and-multiple-myeloma-q-with-msk-cancer-and-nutrition-experts

https://connect.mayoclinic.org/comment/1497898/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: 18 hours ago

Another resource for people with MGUS. https://pubmed.ncbi.nlm.nih.gov/37439374/ Disease associations with monoclonal gammopathy of undetermined significance (MGUS)...

https://connect.mayoclinic.org/comment/1454481/

Discussion: iSTOPMM study and the AI basics

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2025

Hi @stuckonu, you'll notice that I moved your message to an existing discussion where you can...

https://connect.mayoclinic.org/comment/74594/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2020

I'm a 70 yo woman with celiac (15 years), brand new stage 3a chronic kidney disease,...

https://connect.mayoclinic.org/comment/1188403/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

MGUS is considered asymptomatic and is not a cancerous condition, which is why the "US" stands...

https://connect.mayoclinic.org/comment/1191413/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Hello @andreasschmieg and welcome to Mayo Connect. Well, you may be new to the MGUS club...

https://connect.mayoclinic.org/comment/886214/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi @canadabob since you’re already in the MGUS support group you’ve most likely seen some of...

https://connect.mayoclinic.org/comment/895155/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

A bone marrow biopsy is not always necessary with MGUS. Of course you should rely upon...

https://connect.mayoclinic.org/comment/1433610/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2025