Blood Cancers & Disorders Support Group

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Comments (302)

@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...

https://connect.mayoclinic.org/comment/244392/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2019

Hi Matt, @mtnrunner8981 Finding answers to some of our medical issues can be a real test...

https://connect.mayoclinic.org/comment/1462042/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

@cemeterygal01, as you gather information on your particular combination of both amyloidosis and multiple myeloma, you...

https://connect.mayoclinic.org/comment/853948/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...

https://connect.mayoclinic.org/comment/885970/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Clifford, you may be interested in this related discussion as you research more about amyloidosis: -...

https://connect.mayoclinic.org/comment/846424/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Hi Becky, Here's a good discussion to connect with others talking about amyloidosis - Diagnosed with...

https://connect.mayoclinic.org/comment/738582/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

My plasma cells from my bone marrow biopsy are 15% so the doc thinks I now...

https://connect.mayoclinic.org/comment/1151172/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

I am not aware of any more accurate tests for Amyloidosis. Do you? I have had...

https://connect.mayoclinic.org/comment/754607/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...

https://connect.mayoclinic.org/comment/1163095/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...

https://connect.mayoclinic.org/comment/869204/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...

https://connect.mayoclinic.org/comment/687248/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

@rhunt47, I'm tagging a few members who have experience with cardiac amyloidosis like @mookiencoco @judithh580 @naiviv...

https://connect.mayoclinic.org/comment/1478473/

Discussion: Cardiac Amyloidosis Anyone else diagnosed with this disease?

Support Group: Heart & Blood Health

Posted: Jan 9 8:22pm

@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis...

https://connect.mayoclinic.org/comment/732564/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@amyinsc, I can only imagine how concerned you are for your father and to see him...

https://connect.mayoclinic.org/comment/1411996/

Discussion: AL Amyloidosis types and Neuropathy

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Just curious - are there other people out there that have multiple myeloma and amyloidosis

https://connect.mayoclinic.org/comment/1510844/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 20 11:23pm

@sb428, I moved your question to this existing discussion group of people who have both multiple...

https://connect.mayoclinic.org/comment/1518959/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:01pm

Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...

https://connect.mayoclinic.org/comment/824887/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

what happens after you have tested positive for amyloidosis and just had the bone marrow biopsy?...

https://connect.mayoclinic.org/comment/1471032/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2025

Life is keeping you hopping @dorothea58 You mention hereditary-familial ATTR and not the wild type ....

https://connect.mayoclinic.org/comment/1540709/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

@coug42, you may also be interested in these related discussions: - Diagnosed with MGUS/Amyloidosis https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/ -...

https://connect.mayoclinic.org/comment/1103249/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024