Blood Cancers & Disorders Support Group

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Comments (251)

@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...

https://connect.mayoclinic.org/comment/1163095/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 26 3:06pm

@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...

https://connect.mayoclinic.org/comment/244392/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2019

My plasma cells from my bone marrow biopsy are 15% so the doc thinks I now...

https://connect.mayoclinic.org/comment/1151172/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 3 9:32am

@cemeterygal01, as you gather information on your particular combination of both amyloidosis and multiple myeloma, you...

https://connect.mayoclinic.org/comment/853948/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...

https://connect.mayoclinic.org/comment/885970/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi Becky, Here's a good discussion to connect with others talking about amyloidosis - Diagnosed with...

https://connect.mayoclinic.org/comment/738582/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Clifford, you may be interested in this related discussion as you research more about amyloidosis: -...

https://connect.mayoclinic.org/comment/846424/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...

https://connect.mayoclinic.org/comment/687248/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...

https://connect.mayoclinic.org/comment/869204/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

I am not aware of any more accurate tests for Amyloidosis. Do you? I have had...

https://connect.mayoclinic.org/comment/754607/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

@packgb19 Hello Patrick: We do have some members on Connect who are discussion Amyloidosis. Here is...

https://connect.mayoclinic.org/comment/282773/

Discussion: Does anyone have amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2019

Our experience with gi amyloidosis was different. That said you may want to suggest that a...

https://connect.mayoclinic.org/comment/1174177/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis...

https://connect.mayoclinic.org/comment/732564/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

I would like to invite @oldkarl back to this discussion as he has amyloidosis and has...

https://connect.mayoclinic.org/comment/213108/

Discussion: AL amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2018

Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...

https://connect.mayoclinic.org/comment/824887/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

@coug42, you may also be interested in these related discussions: - Diagnosed with MGUS/Amyloidosis https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/ -...

https://connect.mayoclinic.org/comment/1103249/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 8:25pm

How about Amyloidosis?

https://connect.mayoclinic.org/comment/623737/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2021

Hi @nick0820. You mentioned you have amyloidosis but your tests results and symptoms don't meet the...

https://connect.mayoclinic.org/comment/282780/

Discussion: Does anyone have amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2019

Hi @nick0820, I want to add my welcome. You may be interested in this video by...

https://connect.mayoclinic.org/comment/88333/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

Welcome to Connect @sseats. Since Amyloidosis can affect multiple areas/organs in the body getting the right...

https://connect.mayoclinic.org/comment/1061952/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 4 9:26am