Blood Cancers & Disorders Support Group

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Comments (257)

Mayo Clinic has some information on Polycythemia Vera that might be helpful. -- Polycythemia vera -...

https://connect.mayoclinic.org/comment/780576/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

@chadknudson started this discussion a while back that may interest you. - Polycythemia Vera and Nutritional...

https://connect.mayoclinic.org/comment/817272/

Discussion: Polycythemia Vera: What foods should I eat?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Welcome to the group, Michael. You may wish to connect with other members talking about polycythemia...

https://connect.mayoclinic.org/comment/670395/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2022

@charliebriggs1godforall, I'm tagging you to make sure that you saw the helpful posts that you received...

https://connect.mayoclinic.org/comment/793638/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

Welcome @toriaflo. I hope you saw @loribmt's post with some info related to your question about...

https://connect.mayoclinic.org/comment/737415/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

https://www.verywellhealth.com/polycythemia-vera-diet-5204993 The disease is not caused by dietary factors, and it cannot be reversed or managed...

https://connect.mayoclinic.org/comment/815925/

Discussion: Polycythemia Vera: What foods should I eat?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

@stljack, welcome. Fellow members like @pamdg @pennyhedgecoth @michael11750 @tlsantin @hope19 @atir @clarissa37 @chadknudson @apr931 @mwear can...

https://connect.mayoclinic.org/comment/712650/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: May 30, 2022

Polycythemia vera

https://connect.mayoclinic.org/comment/790958/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Hi @jackiecarey, I moved your question about diet and polycythemai vera to this existing discussion: -...

https://connect.mayoclinic.org/comment/1092578/

Discussion: Polycythemia Vera: What foods should I eat?

Support Group: Blood Cancers & Disorders

Posted: Jun 23 1:15pm

@djab, interesting question. I'm tagging other members who have polycythemia vera to see if they have...

https://connect.mayoclinic.org/comment/785616/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

Welcome @papa6275, I'm tagging fellow members @draney @chattiek @pamdg @lwengel @raremiracle2 to share their experiences with...

https://connect.mayoclinic.org/comment/908365/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Hi @mumma, Welcome to Mayo Connect. I see you’ve been diagnosed with Polycythemia Vera and would...

https://connect.mayoclinic.org/comment/773417/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Such a wise and helpful post, @andreamc03. When were you diagnosed with polycythemia vera?

https://connect.mayoclinic.org/comment/1167416/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 3 2:37pm

@atir, while we wait for some members to join us, you may find @chadknudson's post on...

https://connect.mayoclinic.org/comment/231774/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2018

Hi @bharty615, I moved your post to this active discussion about PV. - Polycythemia Vera: Just...

https://connect.mayoclinic.org/comment/956979/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

@vnvet, I moved your question about the medical connection between polycythemia vera and agent orange to...

https://connect.mayoclinic.org/comment/848835/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

I have polycythemia Vera for 1 year, started with double vision!

https://connect.mayoclinic.org/comment/831584/

Discussion: How does ET affect one’s vision?

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

Hi @faithgirl30, we meet again. :) When your doctor diagnosed you with "thick blood," I wonder...

https://connect.mayoclinic.org/comment/328621/

Discussion: Newly diagnosed with “Thick Blood”. Should I be concerned?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

Have you ever used Google Scholar (https://scholar.google.com/)? It's great for locating the most recent medical research...

https://connect.mayoclinic.org/comment/632214/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2021

Welcome @sammy123 (Sarah). I popped your message over to this existing discussion: - Polycythemia Vera: Just...

https://connect.mayoclinic.org/comment/837781/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023