Blood Cancers & Disorders: Discussions | Page 9

Hello @apr931, Welcome to Connect. You may notice that I moved your message to combine it...

https://connect.mayoclinic.org/comment/194267/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to...

https://connect.mayoclinic.org/comment/974124/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...

https://connect.mayoclinic.org/comment/1062089/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

I don't think anyone is telling people not to travel, just to take their meds and,...

https://connect.mayoclinic.org/comment/1089550/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

For everyone’s info, I messaged through the patient portal and was told up to 10 days...

https://connect.mayoclinic.org/comment/231795/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...

https://connect.mayoclinic.org/comment/1048208/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Hi Remo, I also have ET w/Jak2. There are a lot of different opinions on this...

https://connect.mayoclinic.org/comment/919583/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Hi, We recently found out that my 16 yo daughter has JAK2, very rare and her...

https://connect.mayoclinic.org/comment/799486/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2023

The JAK2 mutation is common among multiple blood cancers. You need to get a molecular panel...

https://connect.mayoclinic.org/comment/298976/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11 12:11pm

From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...

https://connect.mayoclinic.org/comment/870089/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

After two weeks on one pill of HU my eGFR went from 82 to 52. Has...

https://connect.mayoclinic.org/comment/826035/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Hello , I have been treated for PV/ JAK2 for four years . I was on...

https://connect.mayoclinic.org/comment/773685/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Thank you for this information. I will pass this along to my son. I recently found...

https://connect.mayoclinic.org/comment/252005/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

I just hope this isn't preventing you from getting the correct treatment/relief. I would imagine it...

https://connect.mayoclinic.org/comment/231793/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2019

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Hi Sarah, you haven’t posted an update and I was wondering if you’ve had any news...

https://connect.mayoclinic.org/comment/873122/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

I have been very happy to read online the positive responses to taking HU instead of...

https://connect.mayoclinic.org/comment/1313649/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26 7:54pm

I also have ET JAK2. I am taking Hydroxyurea. I do not take aspirin because I...

https://connect.mayoclinic.org/comment/1017787/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

My comment was somewhat vague. I had my first visit with hematologist/oncologist that diagnosed Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/1312651/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 25 2:25pm

Blood Cancers & Disorders Support Group