Blood Cancers & Disorders Support Group

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Comments (1,382)

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

It sound like your doctors are on top of your health. That is a high Jak2...

https://connect.mayoclinic.org/comment/1156319/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Maybe asked already, were you tested for the JAK2 mutation (or others)? This would typically be...

https://connect.mayoclinic.org/comment/1102017/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s...

https://connect.mayoclinic.org/comment/1100223/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

I have no pain or anything else with Hydrea, 500 mg daily. My platelets were 800,000...

https://connect.mayoclinic.org/comment/854230/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

@dragonflylynda I do not take HU for my ET JAK2...I only take a baby aspirin. No...

https://connect.mayoclinic.org/comment/1466046/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

My platelet level is the same as yours with JAK2. I take a baby aspirin. So...

https://connect.mayoclinic.org/comment/1441800/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

So sorry for your problems. I wish you all the best. Sorry I didn't see, do...

https://connect.mayoclinic.org/comment/1421263/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 22, 2025

I’ve just progressed from CML to AML and will be starting same treatment next week. I’d...

https://connect.mayoclinic.org/comment/994063/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

I found MPN Voice on healthunlocked.com. I was diagnosed with ET JAK2 in June 2022 so...

https://connect.mayoclinic.org/comment/770040/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

I've had ET with Jak2 since 2020 and on HU with baby aspirin, I've recently found...

https://connect.mayoclinic.org/comment/1414548/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Curious if your doctors are tracking your JAK2 Variant Allele Frequency (VAF) on a regular basis?...

https://connect.mayoclinic.org/comment/1550728/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 8:13pm

also, to be clear.. I haven't been properly "diagnosed" yet I don't think... just my hematologist's...

https://connect.mayoclinic.org/comment/840529/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Realized I did not answer your initial question. I am not a dr, but my understanding...

https://connect.mayoclinic.org/comment/720876/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2022

@sdcgcarroll Hi I have ET and Jak2 as well. I haven't found alot of information about...

https://connect.mayoclinic.org/comment/1545394/

Discussion: Is it okay to take B12 with essential thrombocythemia (ET)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 7:26am

I do have JAK2. Platelets have been in the 700's since I had to come off...

https://connect.mayoclinic.org/comment/1067492/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

@1995victoria, those are all good questions to ask at your next appointment with oncology. I would...

https://connect.mayoclinic.org/comment/1417629/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 17, 2025