Blood Cancers & Disorders: Discussions | Page 9

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

That’s great news for you. We’re all different, and so are of course each of our...

https://connect.mayoclinic.org/comment/840938/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

I was newly diagnosed with ET with the JAK2 mutation. I do have the red feet....

https://connect.mayoclinic.org/comment/785397/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

I have Jak2 diagnosed in 2019. Was stationed at New River for three years. VA doctor...

https://connect.mayoclinic.org/comment/732843/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

I checked with my hemo/oncologist and taking B12 as advised by my PCP is ok with...

https://connect.mayoclinic.org/comment/1091499/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 22 6:40am

I am amazed at the amount of HU some people are taking. I take 500 mg...

https://connect.mayoclinic.org/comment/877802/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Good day, mate has just been diagnosed with PV, having Jak2 mutation. Have had phlebotomy -...

https://connect.mayoclinic.org/comment/676062/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2022

ET is not necessarily a cancer. My heme doc says there are 4 types and the...

https://connect.mayoclinic.org/comment/917569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

I have not heard about a link between JAK2 and the COVID-19 vaccinations. When my doctor...

https://connect.mayoclinic.org/comment/1032105/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 12 4:39am

I’m waiting on my results for Jak2, CalR and MPL gene, curious do you take B12...

https://connect.mayoclinic.org/comment/696699/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2022

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Personally, I was more scared of stroke or heart attack than the words cancer/chemo when I...

https://connect.mayoclinic.org/comment/1096751/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 30 9:44am

I am a 69 years old was recently diagnosed with ET JAK2 mutation. I just started...

https://connect.mayoclinic.org/comment/787555/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m...

https://connect.mayoclinic.org/comment/787262/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Ive been diagnosed with PV one of the MPN'S and I could tell something was wrong...

https://connect.mayoclinic.org/comment/1088522/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 10:40am

Hello @sharonryanbless, I apologize for the late response to this post. I moved this post to...

https://connect.mayoclinic.org/comment/236049/

Discussion: I have a rare blood disorder protien s with factor 2 mutation with Nas

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2019

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Hi Leonard I also tested for a mutation it’s a monoclonal protein spike. So with that...

https://connect.mayoclinic.org/comment/974150/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Blood Cancers & Disorders Support Group