Blood Cancers & Disorders Support Group

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Comments (254)

Hi @ewash55, I went to an annual physical in Dec23 and had a high WBC count(50k+)....

https://connect.mayoclinic.org/comment/1455066/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Hello Puddy @cookegmailcom, I'm glad to see you have connected with @ejrquast. Here is the link...

https://connect.mayoclinic.org/comment/1383202/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

would you be kind enough to provide the link to I.W.M.F. please. I have Waldrenstroms.

https://connect.mayoclinic.org/comment/1383101/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Hi, I've had IgM lambda MGUS for a few years that has been advancing to Waldenstrom"s...

https://connect.mayoclinic.org/comment/1356871/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Thank you all so much…. I know there is no cure for Waldenstroms but it is...

https://connect.mayoclinic.org/comment/1330696/

Discussion: Palliative care?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Hi Lori, really do appreciate your feedback, you are first person to give me feedback, I...

https://connect.mayoclinic.org/comment/1312773/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Good question. I live near beach in California and cover up big time since we are...

https://connect.mayoclinic.org/comment/1310389/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

@amazon13, what is your current diagnosis? What test result indicated that you didn't have Waldenström macroglobulinemia?...

https://connect.mayoclinic.org/comment/1244112/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

I find it interesting that this conversation thread ended in November 2023. Is it continued somewhere...

https://connect.mayoclinic.org/comment/1200599/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024

I have full blown Waldenstroms lymphoma and on Imbruvica for over 6 months and prednisone. Just...

https://connect.mayoclinic.org/comment/1181350/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2024

I also had a long duration cold in Oct. I ended up with a sinus infection...

https://connect.mayoclinic.org/comment/1178696/

Discussion: Anyone have a low IgM and struggling with a cold virus

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Diagnosis was Waldenstroms after bone marrow biopsy and tons of blood work and scans. Still on...

https://connect.mayoclinic.org/comment/1176335/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

I was diagnosed with MGUS in 2022. I had a M spike in my bloodwork. I...

https://connect.mayoclinic.org/comment/1159810/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

Your questions are 2 I have never asked the oncologist about so I don't really know...

https://connect.mayoclinic.org/comment/1146313/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

I should have been a bit more specific in my answer about the powdered turmeric /...

https://connect.mayoclinic.org/comment/1125171/

Discussion: Finding the best Curcumin

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2024

Thank you ginpene. That's what I thought too, as well as for waldromstrom Macroglobulinemia. Again, thanks.

https://connect.mayoclinic.org/comment/284531/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2019

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

I, too, was diagnosed with Waldenstrom Macroglobulinemia in June, 2015. It's scary. It never goes away....

https://connect.mayoclinic.org/comment/169959/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I would say that keeping your immune system well. Eating healthy, greens, no meat, no bacon....

https://connect.mayoclinic.org/comment/169962/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I, too, was diagnosed with WM in 2015. I am stable so there are no treatments....

https://connect.mayoclinic.org/comment/113918/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2017