Blood Cancers & Disorders Support Group

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Comments (254)

Hi, I've had IgM lambda MGUS for a few years that has been advancing to Waldenstrom"s...

https://connect.mayoclinic.org/comment/1356871/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Thank you all so much…. I know there is no cure for Waldenstroms but it is...

https://connect.mayoclinic.org/comment/1330696/

Discussion: Palliative care?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Hi Lori, really do appreciate your feedback, you are first person to give me feedback, I...

https://connect.mayoclinic.org/comment/1312773/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Good question. I live near beach in California and cover up big time since we are...

https://connect.mayoclinic.org/comment/1310389/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

@amazon13, what is your current diagnosis? What test result indicated that you didn't have Waldenström macroglobulinemia?...

https://connect.mayoclinic.org/comment/1244112/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

I find it interesting that this conversation thread ended in November 2023. Is it continued somewhere...

https://connect.mayoclinic.org/comment/1200599/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024

I have full blown Waldenstroms lymphoma and on Imbruvica for over 6 months and prednisone. Just...

https://connect.mayoclinic.org/comment/1181350/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2024

I also had a long duration cold in Oct. I ended up with a sinus infection...

https://connect.mayoclinic.org/comment/1178696/

Discussion: Anyone have a low IgM and struggling with a cold virus

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Diagnosis was Waldenstroms after bone marrow biopsy and tons of blood work and scans. Still on...

https://connect.mayoclinic.org/comment/1176335/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

I was diagnosed with MGUS in 2022. I had a M spike in my bloodwork. I...

https://connect.mayoclinic.org/comment/1159810/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

Your questions are 2 I have never asked the oncologist about so I don't really know...

https://connect.mayoclinic.org/comment/1146313/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

I should have been a bit more specific in my answer about the powdered turmeric /...

https://connect.mayoclinic.org/comment/1125171/

Discussion: Finding the best Curcumin

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2024

When my oncologist was doing tests to determine Waldenstroms, she said I needed a BMB and...

https://connect.mayoclinic.org/comment/1048617/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Welcome to Connect, @vgdmayo I really can’t answer as to whether or not your husband could...

https://connect.mayoclinic.org/comment/1042368/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

What does your oncologist suggest as far as getting the genetic testing done to confirm WM?...

https://connect.mayoclinic.org/comment/990739/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Welcome to Connect, @careysuzi. It’s great to have you here in the Waldenström's Macroglobulinemia support group...

https://connect.mayoclinic.org/comment/989959/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hola a todos. Hace algunos meses escribí en este lugar para interactuar con otras personas que...

https://connect.mayoclinic.org/comment/942134/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

@emma405, I moved your question to this existing discussion: - With Waldenstrom, what side effects did...

https://connect.mayoclinic.org/comment/941751/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Mike, I made the assumption you were on Medicare like I am. All treatments I received...

https://connect.mayoclinic.org/comment/910703/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

I have both and each problem can have similar side effects. I’m not a Dr this...

https://connect.mayoclinic.org/comment/910221/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023