Blood Cancers & Disorders Support Group

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Comments (272)

At this point seems to be NMZL; however when I asked about WM SMM the oncologist...

https://connect.mayoclinic.org/comment/752396/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2022

know the AL amyloidosis is in his kidneys and the neuropathy but is systemic so where...

https://connect.mayoclinic.org/comment/113912/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2016

I would like to view the video but receive a message that it is not available....

https://connect.mayoclinic.org/comment/1337037/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 28 11:19am

For a patient with MZL also with wtttr and AL cardiac amyloidosis in persistent Afib and...

https://connect.mayoclinic.org/comment/845254/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

My husband will probably start with chemo depending on the results of the immunoglobulins panels. His...

https://connect.mayoclinic.org/comment/902284/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2023

Hah. Whatever works, eh? 😂 You made me laugh out loud this morning. I intended to...

https://connect.mayoclinic.org/comment/726708/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

You could have a bone marrow biopsy. I would ask for your Dr to do a...

https://connect.mayoclinic.org/comment/1119116/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

I had positive results from a kidney biopsy sent to Mayo Clinic with an Amyloidosis diagnosis...

https://connect.mayoclinic.org/comment/965936/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

So sorry to hear this about both being coupled as in your case! Amyloidosis sometimes seems...

https://connect.mayoclinic.org/comment/869639/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

yes, what you learned is correct. The AvWS was diagnosed first, and when the usual suspects...

https://connect.mayoclinic.org/comment/1185087/

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

@buckett “Have any other males out there on this forum with MGUS seen this if cytogenetic...

https://connect.mayoclinic.org/comment/1221769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 10:25pm

Yes, thanks. She has AL amyloidosis. She got her stem cells back Friday. When she is...

https://connect.mayoclinic.org/comment/273513/

Discussion: Protecting patient from getting infections from me & others

Support Group: Caregivers

Posted: Aug 26, 2019

@nick0820 Please keep us in the loop of communication! It's great you are not letting this...

https://connect.mayoclinic.org/comment/88332/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

I had a terribly painful experience with the first bone marrow biopsy, and my doctor said...

https://connect.mayoclinic.org/comment/1332963/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 22 5:58pm

Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...

https://connect.mayoclinic.org/comment/1041681/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Just got back a Positive Amyloid fat pad biopsy Everyone I talked to prior to the...

https://connect.mayoclinic.org/comment/1082452/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

Lori, Thank you for your encouraging words. Some days are more difficult than others, but I...

https://connect.mayoclinic.org/comment/724431/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2022

I was recently diagnosed and I am about to finish or rather complete a series of...

https://connect.mayoclinic.org/comment/962761/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023

I have smouldering myeloma (mcus) they have never said any diet for this but check out...

https://connect.mayoclinic.org/comment/81212/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

I had high protein in my urine back in 1996 with lots of tests & finally...

https://connect.mayoclinic.org/comment/723733/

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2022